{"id":6778,"date":"2022-01-12T22:33:26","date_gmt":"2022-01-12T21:33:26","guid":{"rendered":"https:\/\/aliber.org\/web\/?page_id=6778"},"modified":"2026-07-23T14:47:58","modified_gmt":"2026-07-23T12:47:58","slug":"socios","status":"publish","type":"page","link":"https:\/\/aliber.org\/web\/socios\/","title":{"rendered":"Socios"},"content":{"rendered":"\t\t
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\"\"\nFADEPOF<\/a>\nFederaci\u00f3n Argentina De Enfermedades Poco Frecuentes<\/span>\nRoberta Anido, Argentina<\/div>\n
\"\"\nInstituto Vidas Raras<\/a>\nInstituto Vidas Raras<\/span>\nAmira Awada, Brasil<\/div>\n
\"\"\nACOPEL<\/a>\nAsociaci\u00f3n Colombiana De Pacientes Con Enfermedades De Dep\u00f3sito Lisosomal<\/span>\nLuz Victoria Salazar, Colombia<\/div>\n
\"\"\nFEPEL DASHA<\/a>\nFundaci\u00f3n Ecuatoriana De Pacientes Con Enfermedades De Dep\u00f3sito Lisosomal<\/span>\nEliecer Quispe, Ecuador<\/div>\n
\"\"\nFEDER<\/a>\nFederaci\u00f3n Espa\u00f1ola De Enfermedades Raras<\/span>\nAlba Ancochea, Espa\u00f1a<\/div>\n
\"\"\nD’GENES<\/a>\nD\u00b4Genes Asociaci\u00f3n De Enfermedades Raras<\/span>\nMiguel Angel Ruiz, Espa\u00f1a<\/div>\n
\"\"\nOMER<\/a>\nOrganizaci\u00f3n Mexicana De Enfermedades Raras<\/span>\nJes\u00fas Navarro, M\u00e9xico<\/div>\n
\"\"\nFEDRA<\/a>\nFederaci\u00f3n Portuguesa De Enfermedades Raras<\/span>\nLuis Quaresma, Portugal<\/div>\n
\"\"\nATUERU<\/a>\nAsociaci\u00f3n Todos Unidos Por Las Enfermedades Raras Uruguay<\/span>\nAndrea Falero, Uruguay<\/div>\n
\"\"\nFELCH<\/a>\nFundaci\u00f3n Chilena De Pacientes De Enfermedades Lisosomales<\/span>\nMyriam Estivill, Chile<\/div>\n
\"\"\nENHU<\/a>\nObservatorio Interinstitucional De Enfermedades Huerfanas<\/span>\nLuz Victoria Salazar, Colombia<\/div>\n
\"\"\nASOIBEROAMC<\/a>\nFundaci\u00f3n Iberoamericana De Artrogriposis M\u00faltiple Cong\u00e9nita Y Otras Enfermedades No Comunes<\/span>\nJaneth Pe\u00f1aloza, Colombia<\/div>\n
\"\"\nCasa Hunter<\/a>\nCasa Hunter<\/span>\nAntonio Daher, Brasil<\/div>\n
\"\"\nABPAR<\/a>\nAssocia\u00e7ao Brasileira De Paramiloidose<\/span>\nFabio Figueredo, Brasil<\/div>\n
\"\"\nAELIP<\/a>\nAsociaci\u00f3n de Familiares y Afectados por Lipodistrofias<\/span>\nJos\u00e9 Jer\u00e9z Ruiz, Espa\u00f1a<\/div>\n
\"\"\nAPEyEA<\/a>\nAsociaci\u00f3n Paraguaya De Esclerodermia Y Enfermedades Autoinmunes<\/span>\nDeolinda Acosta, Paraguay<\/div>\n
\"\"\nFEPER<\/a>\nFederaci\u00f3n Peruana De Enfermedades Raras<\/span>\nM\u00aa Lourdes Rodr\u00edguez, Per\u00fa<\/div>\n
\"\"\nAsociaci\u00f3n Prader Willi del Pa\u00eds<\/a>\nAsociaci\u00f3n Prader Willi del Pa\u00eds<\/span>\nMar\u00eda In\u00e9s Fonseca, Uruguay<\/div>\n
\"\"\nAs\u00ed Colombia<\/a>\nAs\u00ed Colombia<\/span>\nJuliana Gonz\u00e1lez, Colombia<\/div>\n
\"\"\nAlianza Mexicana de Familias de Von Hippel Lindau<\/a>\nAlianza Mexicana de Familias de Von Hippel Lindau<\/span>\nEdith Godina Herrera\u00a0, M\u00e9xico<\/div>\n
\"\"\nEsperantra<\/a>\nEsperantra<\/span>\nKarla Ruiz de Castilla, Per\u00fa<\/div>\n
\"\"\nFundaci\u00f3n CDLS Colombia<\/a>\nFundaci\u00f3n CDLS Colombia<\/span>\nJohana Mendivelso, Colombia<\/div>\n
\"\"\nFUNCOLEHF<\/a>\nFundaci\u00f3n Colombiana para Enfermedades Hu\u00e9rfanas o Poco Frecuentes<\/span>\nMartha Herrera, Colombia<\/div>\n
\"\"\nFUNDEM<\/a>\nFundaci\u00f3n Colombiana para la Esclerosis M\u00faltiple y Otras Enfermedades<\/span>\nXiomary Bermudez, Colombia<\/div>\n
\"\"\nRett Guatemala<\/a>\nRett Guatemala<\/span>\nClarivel Castillo, Guatemala<\/div>\n
\"\"\naYOUdas<\/a>\naYOUdas Panam\u00e1<\/span>\nErika Otero, Panam\u00e1<\/div>\n
\"\"\nAERyOH<\/a>\nAsociaci\u00f3n Espa\u00f1ola de Raquitismos y Osteomalacia Heredados<\/span>\nSonia Fern\u00e1ndez Serrano, Espa\u00f1a<\/div>\n
\"\"\nFundaci\u00f3n Poco Frecuentes<\/a>\nFundaci\u00f3n Poco Frecuentes<\/span>\nMar Garc\u00eda Beltr\u00e1n, Espa\u00f1a<\/div>\n
\"\"\nAsociaci\u00f3n Espa\u00f1ola de Porfiria<\/a>\nAsociaci\u00f3n Espa\u00f1ola de Porfiria<\/span>\nFide Miron, Espa\u00f1a<\/div>\n
\"\"\nFUERAN<\/a>\nFundaci\u00f3n Dominicana de enfermedades Raras Neurodegenerativas<\/span>\nAndrea Yesenia Valle, Rep\u00fablica Dominicana<\/div>\n
\"\"\nFundaci\u00f3n Nuestro mundo Cornelia de Lange Costa Rica<\/a>\nFundaci\u00f3n Nuestro mundo Cornelia de Lange Costa Rica<\/span>\nYessenia Moreira Barboza, Costa Rica<\/div>\n
\"\"\nRETIMUR<\/a>\nAsociaci\u00f3n Retina Murcia<\/span>\nElena Esteban Hidalgo, Espa\u00f1a<\/div>\n
\"\"\nPerthes Kids Foundation<\/a>\nPerthes Kids Foundation<\/span>\nClaudia Giffuni-Pai, USA<\/div>\n
\"\"\nSB<\/a>\nASOCIACI\u00d3N DE ENFERMEDADES RARAS Y DISCAPACIDAD SENSE BARRERES DE PETRER<\/span>\nMauro F\u00e9lix Rosati Garc\u00eda-Morato, Espa\u00f1a<\/div>\n
\"\"\nUNIDOSPELAVIDA<\/a>\nUnidos pela Vida – Instituto Brasileiro de Aten\u00e7\u00e3o \u00e0 Fibrose C\u00edstica<\/span>\nGabriel Johnson<\/div>\n
\"\"\nAPRONEP<\/a>\nAsociaci\u00f3n pro-ni\u00f1os con enfermedades progresivas, raras o poco frecuentes APRONEP-er<\/span>\nYamileth Chaves Soto<\/div>\n
\"\"\nFUNHEPA<\/a>\nFundaci\u00f3n Hondure\u00f1a para la Salud Hep\u00e1tica <\/span>\nDaniela Sofia Cruz Betanco<\/div>\n
\"\"\nA TODO PULMON<\/a>\nA todo pulm\u00f3n Guayana HP – Venezuela<\/span>\nKatiusca Salinas<\/div>\n
\"\"\nFUNSALUZ<\/a>\nFundaci\u00f3n Sal y Luz de Venezuela<\/span>\nKatiuska Mor\u00e1n<\/div>\n
\"\"\nGRUPO CUBANO DE ENFERMEDADES RARAS<\/a>\nEnfermedades Raras Cuba – Havana<\/span>\nReyma Cuet\u00fa<\/div>\n
\"\"\nACORP<\/a>\nAsociaci\u00f3n Colombiana Retinosis Pigmentaria<\/span>\nHenry Guio, Colombia<\/div>\n
\"\"\nFENPOF<\/a>\nFederaci\u00f3n de Enfermedades Poco Frecuentes Chile<\/span>\nJessica Cubillos, Chile<\/div>\n
\"\"\nRETINA Iberoam\u00e9rica<\/a>\nRetina Iberoam\u00e9rica<\/span>\nAndr\u00e9s Mayor Lorenzo, Espa\u00f1a<\/div>\n
\"\"\nAMES Espa\u00f1a<\/a>\nAsociaci\u00f3n de Atrofia Multisist\u00e9mica Espa\u00f1a<\/span>\nMois\u00e9s Ogando Regueiro, Espa\u00f1a<\/div>\n
\"\"\nFEDE<\/a>\nFederaci\u00f3n Espa\u00f1ola de Epilepsia<\/span>\nElvira Vacas, Espa\u00f1a<\/div>\n
\"\"\nIAC<\/a>\nInstituto Amor e Carinho<\/span>\nMariane M Goes, Brasil<\/div>\n
\"\"\nGENES<\/a>\nGenes Latinoam\u00e9rica A.C.<\/span>\nMiralda Gonzalez Ortiz, M\u00e9xico<\/div>\n
\"\"\nMVA SOCIETY<\/a>\nMVA Society<\/span>\nJonathan Bracey, Reino Unido<\/div>\n
\"\"\nALASER<\/a>\nALASER<\/span>\nAnthony Latour, Panama<\/div>\n
\"\"\nFUNDHEMI<\/a>\nFundaci\u00f3n de Hemisferectom\u00eda<\/span>\nMar\u00eda Marta Bertone, Argentina<\/div>\n
\"\"\nAPAMIG<\/a>\nAsociaci\u00f3n Paraguaya de Miastenia Gravis<\/span>\nAraceli Vanessa Florentin de Qui\u00f1\u00f3nez, Paraguay<\/div>\n
\"\"\nFUNDAPSO<\/a>\nAsociaci\u00f3n Paraguaya de Miastenia Gravis<\/span>\nGuillermo Gutierrez, Colombia<\/div>\n
\"\"\nAEHCO<\/a>\nAsociaci\u00f3n para el Angioedema Hereditario en Colombia<\/span>\nAna Cristina Rojas Meyer, Colombia<\/div>\n\n\n\n\n
\"\"\nAFAG<\/a>\nAssocia\u00e7\u00e3o dos Familiares, Amigos e Pessoas com Doen\u00e7as Graves, Raras e Defici\u00eancias.<\/span>\nCecilia Oliveira, Brasil<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

FADEPOF Federaci\u00f3n Argentina De Enfermedades Poco Frecuentes Roberta Anido, Argentina Instituto Vidas Raras Instituto Vidas Raras Amira Awada, Brasil ACOPEL Asociaci\u00f3n Colombiana De Pacientes Con Enfermedades De Dep\u00f3sito Lisosomal Luz Victoria Salazar, Colombia FEPEL DASHA Fundaci\u00f3n Ecuatoriana De Pacientes Con Enfermedades De Dep\u00f3sito Lisosomal Eliecer Quispe, Ecuador FEDER Federaci\u00f3n Espa\u00f1ola De Enfermedades Raras Alba Ancochea,[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_exactmetrics_skip_tracking":false,"footnotes":""},"class_list":["post-6778","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/pages\/6778","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=6778"}],"version-history":[{"count":276,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/pages\/6778\/revisions"}],"predecessor-version":[{"id":11294,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/pages\/6778\/revisions\/11294"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=6778"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}