{"id":6778,"date":"2022-01-12T22:33:26","date_gmt":"2022-01-12T21:33:26","guid":{"rendered":"https:\/\/aliber.org\/web\/?page_id=6778"},"modified":"2025-08-30T00:13:38","modified_gmt":"2025-08-29T22:13:38","slug":"socios","status":"publish","type":"page","link":"https:\/\/aliber.org\/web\/socios\/","title":{"rendered":"Socios"},"content":{"rendered":"\t\t
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\"\"\nFADEPOF<\/a>\nFederaci\u00f3n Argentina De Enfermedades Poco Frecuentes<\/span>\nRoberta Anido, Argentina<\/div>\n
\"\"\nInstituto Vidas Raras<\/a>\nInstituto Vidas Raras<\/span>\nAmira Awada, Brasil<\/div>\n
\"\"\nACOPEL<\/a>\nAsociaci\u00f3n Colombiana De Pacientes Con Enfermedades De Dep\u00f3sito Lisosomal<\/span>\nLuz Victoria Salazar, Colombia<\/div>\n
\"\"\nFEPEL DASHA<\/a>\nFundaci\u00f3n Ecuatoriana De Pacientes Con Enfermedades De Dep\u00f3sito Lisosomal<\/span>\nEliecer Quispe, Ecuador<\/div>\n
\"\"\nFEDER<\/a>\nFederaci\u00f3n Espa\u00f1ola De Enfermedades Raras<\/span>\nAlba Ancochea, Espa\u00f1a<\/div>\n
\"\"\nD’GENES<\/a>\nD\u00b4Genes Asociaci\u00f3n De Enfermedades Raras<\/span>\nMiguel Angel Ruiz, Espa\u00f1a<\/div>\n
\"\"\nOMER<\/a>\nOrganizaci\u00f3n Mexicana De Enfermedades Raras<\/span>\nJes\u00fas Navarro, M\u00e9xico<\/div>\n
\"\"\nFEDRA<\/a>\nFederaci\u00f3n Portuguesa De Enfermedades Raras<\/span>\nLuis Quaresma, Portugal<\/div>\n
\"\"\nATUERU<\/a>\nAsociaci\u00f3n Todos Unidos Por Las Enfermedades Raras Uruguay<\/span>\nAndrea Falero, Uruguay<\/div>\n
\"\"\nFELCH<\/a>\nFundaci\u00f3n Chilena De Pacientes De Enfermedades Lisosomales<\/span>\nMyriam Estivill, Chile<\/div>\n
\"\"\nENHU<\/a>\nObservatorio Interinstitucional De Enfermedades Huerfanas<\/span>\nLuz Victoria Salazar, Colombia<\/div>\n
\"\"\nASOIBEROAMC<\/a>\nFundaci\u00f3n Iberoamericana De Artrogriposis M\u00faltiple Cong\u00e9nita Y Otras Enfermedades No Comunes<\/span>\nJaneth Pe\u00f1aloza, Colombia<\/div>\n
\"\"\nCasa Hunter<\/a>\nCasa Hunter<\/span>\nAntonio Daher, Brasil<\/div>\n
\"\"\nABPAR<\/a>\nAssocia\u00e7ao Brasileira De Paramiloidose<\/span>\nFabio Figueredo, Brasil<\/div>\n
\"\"\nAELIP<\/a>\nAsociaci\u00f3n de Familiares y Afectados por Lipodistrofias<\/span>\nJos\u00e9 Jer\u00e9z Ruiz, Espa\u00f1a<\/div>\n
\"\"\nAPEyEA<\/a>\nAsociaci\u00f3n Paraguaya De Esclerodermia Y Enfermedades Autoinmunes<\/span>\nDeolinda Acosta, Paraguay<\/div>\n
\"\"\nFEPER<\/a>\nFederaci\u00f3n Peruana De Enfermedades Raras<\/span>\nM\u00aa Lourdes Rodr\u00edguez, Per\u00fa<\/div>\n
\"\"\nAsociaci\u00f3n Prader Willi del Pa\u00eds<\/a>\nAsociaci\u00f3n Prader Willi del Pa\u00eds<\/span>\nMar\u00eda In\u00e9s Fonseca, Uruguay<\/div>\n
\"\"\nAs\u00ed Colombia<\/a>\nAs\u00ed Colombia<\/span>\nJuliana Gonz\u00e1lez, Colombia<\/div>\n
\"\"\nAlianza Mexicana de Familias de Von Hippel Lindau<\/a>\nAlianza Mexicana de Familias de Von Hippel Lindau<\/span>\nEdith Godina Herrera\u00a0, M\u00e9xico<\/div>\n
\"\"\nEsperantra<\/a>\nEsperantra<\/span>\nKarla Ruiz de Castilla, Per\u00fa<\/div>\n
\"\"\nFundaci\u00f3n CDLS Colombia<\/a>\nFundaci\u00f3n CDLS Colombia<\/span>\nJohana Mendivelso, Colombia<\/div>\n
\"\"\nFUNCOLEHF<\/a>\nFundaci\u00f3n Colombiana para Enfermedades Hu\u00e9rfanas o Poco Frecuentes<\/span>\nMartha Herrera, Colombia<\/div>\n
\"\"\nFUNDEM<\/a>\nFundaci\u00f3n Colombiana para la Esclerosis M\u00faltiple y Otras Enfermedades<\/span>\nXiomary Bermudez, Colombia<\/div>\n
\"\"\nRett Guatemala<\/a>\nRett Guatemala<\/span>\nClarivel Castillo, Guatemala<\/div>\n
\"\"\naYOUdas<\/a>\naYOUdas Panam\u00e1<\/span>\nErika Otero, Panam\u00e1<\/div>\n
\"\"\nAERyOH<\/a>\nAsociaci\u00f3n Espa\u00f1ola de Raquitismos y Osteomalacia Heredados<\/span>\nSonia Fern\u00e1ndez Serrano, Espa\u00f1a<\/div>\n
\"\"\nFundaci\u00f3n Poco Frecuentes<\/a>\nFundaci\u00f3n Poco Frecuentes<\/span>\nMar Garc\u00eda Beltr\u00e1n, Espa\u00f1a<\/div>\n
\"\"\nAsociaci\u00f3n Espa\u00f1ola de Porfiria<\/a>\nAsociaci\u00f3n Espa\u00f1ola de Porfiria<\/span>\nFide Miron, Espa\u00f1a<\/div>\n
\"\"\nFUERAN<\/a>\nFundaci\u00f3n Dominicana de enfermedades Raras Neurodegenerativas<\/span>\nAndrea Yesenia Valle, Rep\u00fablica Dominicana<\/div>\n
\"\"\nFundaci\u00f3n Nuestro mundo Cornelia de Lange Costa Rica<\/a>\nFundaci\u00f3n Nuestro mundo Cornelia de Lange Costa Rica<\/span>\nYessenia Moreira Barboza, Costa Rica<\/div>\n
\"\"\nRETIMUR<\/a>\nAsociaci\u00f3n Retina Murcia<\/span>\nElena Esteban Hidalgo, Espa\u00f1a<\/div>\n
\"\"\nALAPA<\/a>\nAlianza Argentina de Pacientes<\/span>\nFlorencia Braga Men\u00e9ndez, Argentina<\/div>\n
\"\"\nPerthes Kids Foundation<\/a>\nPerthes Kids Foundation<\/span>\nClaudia Giffuni-Pai, USA<\/div>\n
\"\"\nSB<\/a>\nASOCIACI\u00d3N DE ENFERMEDADES RARAS Y DISCAPACIDAD SENSE BARRERES DE PETRER<\/span>\nMauro F\u00e9lix Rosati Garc\u00eda-Morato, Espa\u00f1a<\/div>\n
\"\"\nUNIDOSPELAVIDA<\/a>\nUnidos pela Vida – Instituto Brasileiro de Aten\u00e7\u00e3o \u00e0 Fibrose C\u00edstica<\/span>\nGabriel Johnson<\/div>\n
\"\"\nAPRONEP<\/a>\nAsociaci\u00f3n pro-ni\u00f1os con enfermedades progresivas, raras o poco frecuentes APRONEP-er<\/span>\nYamileth Chaves Soto<\/div>\n
\"\"\nMANITAS DE AMOR<\/a>\nFundaci\u00f3n Manitas de Amor de Ecuador<\/span>\nCarmen Mayorga<\/div>\n
\"\"\nFUNHEPA<\/a>\nFundaci\u00f3n Hondure\u00f1a para la Salud Hep\u00e1tica <\/span>\nDaniela Sofia Cruz Betanco<\/div>\n
\"\"\nA TODO PULMON<\/a>\nA todo pulm\u00f3n Guayana HP – Venezuela<\/span>\nKatiusca Salinas<\/div>\n
\"\"\nFUNSALUZ<\/a>\nFundaci\u00f3n Sal y Luz de Venezuela<\/span>\nKatiuska Mor\u00e1n<\/div>\n
\"\"\nGRUPO CUBANO DE ENFERMEDADES RARAS<\/a>\nEnfermedades Raras Cuba – Havana<\/span>\nReyma Cuet\u00fa<\/div>\n
\"\"\nHIPUA<\/a>\nASOCIACI\u00d3N CIVIL HIPUA – HIPERTENSI\u00d3N PULMONAR ARGENTINA<\/span>\nLic. Nancy Campelo<\/div>\n
\"\"\nACORP<\/a>\nAsociaci\u00f3n Colombiana Retinosis Pigmentaria<\/span>\nHenry Guio, Colombia<\/div>\n
\"\"\nFENPOF<\/a>\nFederaci\u00f3n de Enfermedades Poco Frecuentes Chile<\/span>\nJessica Cubillos, Chile<\/div>\n
\"\"\nRETINA Iberoam\u00e9rica<\/a>\nRetina Iberoam\u00e9rica<\/span>\nAndr\u00e9s Mayor Lorenzo, Espa\u00f1a<\/div>\n
\"\"\nAMES Espa\u00f1a<\/a>\nAsociaci\u00f3n de Atrofia Multisist\u00e9mica Espa\u00f1a<\/span>\nMois\u00e9s Ogando Regueiro, Espa\u00f1a<\/div>\n
\"\"\nFEDE<\/a>\nFederaci\u00f3n Espa\u00f1ola de Epilepsia<\/span>\nElvira Vacas, Espa\u00f1a<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

FADEPOF Federaci\u00f3n Argentina De Enfermedades Poco Frecuentes Roberta Anido, Argentina Instituto Vidas Raras Instituto Vidas Raras Amira Awada, Brasil ACOPEL Asociaci\u00f3n Colombiana De Pacientes Con Enfermedades De Dep\u00f3sito Lisosomal Luz[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"class_list":["post-6778","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/pages\/6778","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=6778"}],"version-history":[{"count":237,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/pages\/6778\/revisions"}],"predecessor-version":[{"id":10024,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/pages\/6778\/revisions\/10024"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=6778"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}