{"id":10011,"date":"2025-08-29T15:37:17","date_gmt":"2025-08-29T13:37:17","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10011"},"modified":"2025-08-29T15:38:41","modified_gmt":"2025-08-29T13:38:41","slug":"%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1-5","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/08\/29\/%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1-5\/","title":{"rendered":"\ud835\uddd6\ud835\uddfc\ud835\uddfb\ud835\uddfc\ud835\uddf0\ud835\uddf2 \ud835\uddf9\ud835\uddee\ud835\ude00 \ud835\uddf2\ud835\uddfb\ud835\ude01\ud835\uddf6\ud835\uddf1\ud835\uddee\ud835\uddf1\ud835\uddf2\ud835\ude00 \ud835\uddfe\ud835\ude02\ud835\uddf2 \ud835\uddf3\ud835\uddfc\ud835\uddff\ud835\uddfa\ud835\uddee\ud835\uddfb \ud835\uddfd\ud835\uddee\ud835\uddff\ud835\ude01\ud835\uddf2 \ud835\uddf1\ud835\uddf2 \ud835\uddd4\ud835\udddf\ud835\udddc\ud835\uddd5\ud835\uddd8\ud835\udde5"},"content":{"rendered":"<p>El <strong>Instituto Vidas Raras<\/strong> es una ONG sin fines de lucro que promueve los derechos de las personas con enfermedades raras en situaci\u00f3n de vulnerabilidad.<\/p>\n<p>Trabaja en la sensibilizaci\u00f3n de la sociedad y del cuerpo m\u00e9dico, y brinda apoyo, informaci\u00f3n y espacios de encuentro para pacientes y familias.<\/p>\n<p>\u00a1\u00danete a ALIBER! escr\u00edbenos a<\/p>\n<p><a href=\"http:\/\/\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20\">\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20<\/a><\/p>\n<p>para que te guiemos en el proceso de adherirte a nuestra Alianza.<\/p>\n<p>Somos una red que agremia m\u00e1s de 700 organizaciones de pacientes con Enfermedades Raras, presente en 19 pa\u00edses de Iberoam\u00e9rica, que coordina acciones para fortalecer el movimiento asociativo, dar visibilidad a las EERR y representar a las personas con Enfermedades Poco Frecuentes de Iberoam\u00e9rica ante organismos locales, regionales, nacionales e internacionales, creando un espacio de colaboraci\u00f3n conjunta y permanente para compartir conocimientos, experiencias y buenas pr\u00e1cticas en las \u00e1reas social, sanitaria, educativa y laboral.<\/p>\n<p>\ud835\uddd6\ud835\uddfc\ud835\uddfb\ud835\uddf5\ud835\uddf2\ud835\uddf0\u0327\ud835\uddee \ud835\uddee\ud835\ude00 \ud835\uddf2\ud835\uddfb\ud835\ude01\ud835\uddf6\ud835\uddf1\ud835\uddee\ud835\uddf1\ud835\uddf2\ud835\ude00 \ud835\uddfe\ud835\ude02\ud835\uddf2 \ud835\uddf3\ud835\uddee\ud835\ude07\ud835\uddf2\ud835\uddfa \ud835\uddfd\ud835\uddee\ud835\uddff\ud835\ude01\ud835\uddf2 \ud835\uddf1\ud835\uddee \ud835\uddd4\ud835\udddf\ud835\udddc\ud835\uddd5\ud835\uddd8\ud835\udde5<\/p>\n<p><strong>Instituto Vidas Raras<\/strong> \u00e9 uma ONG sem fins lucrativos que promove os direitos das pessoas com doen\u00e7as raras em situa\u00e7\u00e3o de vulnerabilidade.<\/p>\n<p>Atua na conscientiza\u00e7\u00e3o da sociedade e da classe m\u00e9dica e oferece apoio, informa\u00e7\u00e3o e espa\u00e7os de encontro para pacientes e familiares.<\/p>\n<p><strong>Junte-se \u00e0 ALIBER!<\/strong><br \/>\nEscreva para n\u00f3s em:<br \/>\n<a href=\"http:\/\/\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20\">\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc28\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20<\/a><\/p>\n<p>para que possamos orient\u00e1-lo no processo de ades\u00e3o \u00e0 nossa Alian\u00e7a.<\/p>\n<p>Somos uma rede que re\u00fane mais de 700 organiza\u00e7\u00f5es de pacientes com Doen\u00e7as Raras, presente em 19 pa\u00edses da Ibero-Am\u00e9rica, que coordena a\u00e7\u00f5es para fortalecer o movimento associativo, dar visibilidade \u00e0s DR e representar as pessoas com Doen\u00e7as Raras da Ibero-Am\u00e9rica perante organismos locais, regionais, nacionais e internacionais, criando um espa\u00e7o de colabora\u00e7\u00e3o conjunta e permanente para compartilhar conhecimentos, experi\u00eancias e boas pr\u00e1ticas nas \u00e1reas social, de sa\u00fade, educativa e laboral.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-10012 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/08\/Instituto-Vidas-Raras.jpeg\" alt=\"\" width=\"1080\" height=\"1350\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/08\/Instituto-Vidas-Raras.jpeg 1080w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/08\/Instituto-Vidas-Raras-240x300.jpeg 240w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/08\/Instituto-Vidas-Raras-819x1024.jpeg 819w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/08\/Instituto-Vidas-Raras-768x960.jpeg 768w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" \/><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El Instituto Vidas Raras es una ONG sin fines de lucro que promueve los derechos de las personas con enfermedades raras en situaci\u00f3n de vulnerabilidad. Trabaja en la sensibilizaci\u00f3n de<a href=\"https:\/\/aliber.org\/web\/2025\/08\/29\/%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1-5\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":10012,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,138,7],"tags":[],"class_list":["post-10011","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-noticias","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10011","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=10011"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10011\/revisions"}],"predecessor-version":[{"id":10013,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10011\/revisions\/10013"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/10012"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=10011"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=10011"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=10011"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}