{"id":10011,"date":"2025-08-29T15:37:17","date_gmt":"2025-08-29T13:37:17","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10011"},"modified":"2025-08-29T15:38:41","modified_gmt":"2025-08-29T13:38:41","slug":"%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1-5","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/08\/29\/%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1-5\/","title":{"rendered":"\ud835\uddd6\ud835\uddfc\ud835\uddfb\ud835\uddfc\ud835\uddf0\ud835\uddf2 \ud835\uddf9\ud835\uddee\ud835\ude00 \ud835\uddf2\ud835\uddfb\ud835\ude01\ud835\uddf6\ud835\uddf1\ud835\uddee\ud835\uddf1\ud835\uddf2\ud835\ude00 \ud835\uddfe\ud835\ude02\ud835\uddf2 \ud835\uddf3\ud835\uddfc\ud835\uddff\ud835\uddfa\ud835\uddee\ud835\uddfb \ud835\uddfd\ud835\uddee\ud835\uddff\ud835\ude01\ud835\uddf2 \ud835\uddf1\ud835\uddf2 \ud835\uddd4\ud835\udddf\ud835\udddc\ud835\uddd5\ud835\uddd8\ud835\udde5"},"content":{"rendered":"

El Instituto Vidas Raras<\/strong> es una ONG sin fines de lucro que promueve los derechos de las personas con enfermedades raras en situaci\u00f3n de vulnerabilidad.<\/p>\n

Trabaja en la sensibilizaci\u00f3n de la sociedad y del cuerpo m\u00e9dico, y brinda apoyo, informaci\u00f3n y espacios de encuentro para pacientes y familias.<\/p>\n

\u00a1\u00danete a ALIBER! escr\u00edbenos a<\/p>\n

\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20<\/a><\/p>\n

para que te guiemos en el proceso de adherirte a nuestra Alianza.<\/p>\n

Somos una red que agremia m\u00e1s de 700 organizaciones de pacientes con Enfermedades Raras, presente en 19 pa\u00edses de Iberoam\u00e9rica, que coordina acciones para fortalecer el movimiento asociativo, dar visibilidad a las EERR y representar a las personas con Enfermedades Poco Frecuentes de Iberoam\u00e9rica ante organismos locales, regionales, nacionales e internacionales, creando un espacio de colaboraci\u00f3n conjunta y permanente para compartir conocimientos, experiencias y buenas pr\u00e1cticas en las \u00e1reas social, sanitaria, educativa y laboral.<\/p>\n

\ud835\uddd6\ud835\uddfc\ud835\uddfb\ud835\uddf5\ud835\uddf2\ud835\uddf0\u0327\ud835\uddee \ud835\uddee\ud835\ude00 \ud835\uddf2\ud835\uddfb\ud835\ude01\ud835\uddf6\ud835\uddf1\ud835\uddee\ud835\uddf1\ud835\uddf2\ud835\ude00 \ud835\uddfe\ud835\ude02\ud835\uddf2 \ud835\uddf3\ud835\uddee\ud835\ude07\ud835\uddf2\ud835\uddfa \ud835\uddfd\ud835\uddee\ud835\uddff\ud835\ude01\ud835\uddf2 \ud835\uddf1\ud835\uddee \ud835\uddd4\ud835\udddf\ud835\udddc\ud835\uddd5\ud835\uddd8\ud835\udde5<\/p>\n

Instituto Vidas Raras<\/strong> \u00e9 uma ONG sem fins lucrativos que promove os direitos das pessoas com doen\u00e7as raras em situa\u00e7\u00e3o de vulnerabilidade.<\/p>\n

Atua na conscientiza\u00e7\u00e3o da sociedade e da classe m\u00e9dica e oferece apoio, informa\u00e7\u00e3o e espa\u00e7os de encontro para pacientes e familiares.<\/p>\n

Junte-se \u00e0 ALIBER!<\/strong>
\nEscreva para n\u00f3s em:
\n\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc28\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20<\/a><\/p>\n

para que possamos orient\u00e1-lo no processo de ades\u00e3o \u00e0 nossa Alian\u00e7a.<\/p>\n

Somos uma rede que re\u00fane mais de 700 organiza\u00e7\u00f5es de pacientes com Doen\u00e7as Raras, presente em 19 pa\u00edses da Ibero-Am\u00e9rica, que coordena a\u00e7\u00f5es para fortalecer o movimento associativo, dar visibilidade \u00e0s DR e representar as pessoas com Doen\u00e7as Raras da Ibero-Am\u00e9rica perante organismos locais, regionais, nacionais e internacionais, criando um espa\u00e7o de colabora\u00e7\u00e3o conjunta e permanente para compartilhar conhecimentos, experi\u00eancias e boas pr\u00e1ticas nas \u00e1reas social, de sa\u00fade, educativa e laboral.<\/p>\n

\"\"<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

El Instituto Vidas Raras es una ONG sin fines de lucro que promueve los derechos de las personas con enfermedades raras en situaci\u00f3n de vulnerabilidad. Trabaja en la sensibilizaci\u00f3n de la sociedad y del cuerpo m\u00e9dico, y brinda apoyo, informaci\u00f3n y espacios de encuentro para pacientes y familias. \u00a1\u00danete a ALIBER! escr\u00edbenos a \ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20 para[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":10012,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"footnotes":""},"categories":[2,138,7],"tags":[],"class_list":["post-10011","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-noticias","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10011","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=10011"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10011\/revisions"}],"predecessor-version":[{"id":10013,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10011\/revisions\/10013"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/10012"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=10011"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=10011"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=10011"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}