{"id":10045,"date":"2025-09-02T23:20:37","date_gmt":"2025-09-02T21:20:37","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10045"},"modified":"2025-09-04T16:34:38","modified_gmt":"2025-09-04T14:34:38","slug":"alapa-alianza-argentina-de-pacientes-comparte-%f0%9d%90%8f%f0%9d%90%9a%f0%9d%90%9c%f0%9d%90%a2%f0%9d%90%9e%f0%9d%90%a7%f0%9d%90%ad%f0%9d%90%9e%f0%9d%90%ac-%f0%9d%90%b2-%f0%9d%90%9c%f0%9d%90%a2","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/09\/02\/alapa-alianza-argentina-de-pacientes-comparte-%f0%9d%90%8f%f0%9d%90%9a%f0%9d%90%9c%f0%9d%90%a2%f0%9d%90%9e%f0%9d%90%a7%f0%9d%90%ad%f0%9d%90%9e%f0%9d%90%ac-%f0%9d%90%b2-%f0%9d%90%9c%f0%9d%90%a2\/","title":{"rendered":"ALAPA – Alianza Argentina de Pacientes comparte: Pacientes y Cient\u00edficos unidos en la \ud835\udfd1\u2027\u00aa \ud835\udc09\ud835\udc28\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc1d\ud835\udc1a \ud835\udc00\ud835\udc2b\ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc1a \ud835\udc1d\ud835\udc1e \ud835\udc06\ud835\udc25\ud835\udc22\ud835\udc28\ud835\udc26\ud835\udc1a\ud835\udc2c"},"content":{"rendered":"\t\t
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El pasado martes 12 de agosto se llev\u00f3 a cabo la \ud835\udfd1\u2027\u00aa \ud835\udc09\ud835\udc28\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc1d\ud835\udc1a \ud835\udc00\ud835\udc2b\ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc1a \ud835\udc1d\ud835\udc1e \ud835\udc06\ud835\udc25\ud835\udc22\ud835\udc28\ud835\udc26\ud835\udc1a\ud835\udc2c en el Centro At\u00f3mico Constituyentes de la CNEA, un encuentro h\u00edbrido, gratuito y abierto al p\u00fablico, que reuni\u00f3 a pacientes, familiares, asociaciones, investigadores y especialistas de Argentina, Espa\u00f1a, Jap\u00f3n y Estados Unidos.<\/p>

La jornada tuvo como objetivo fomentar el intercambio de conocimientos, testimonios y experiencias, as\u00ed como divulgar los avances cient\u00edficos y cl\u00ednicos en el entendimiento y tratamiento de los gliomas, tumores del sistema nervioso central que constituyen el c\u00e1ncer m\u00e1s letal de la infancia.<\/p>

Durante el evento se presentaron avances en terapias dirigidas, inmunoterapia, radioterapia con BNCT, terapia g\u00e9nica, fototerapia, nanomedicina y targeting molecular, adem\u00e1s de proyectos colaborativos de investigaci\u00f3n traslacional impulsados por el Consorcio CRIO.<\/p>

Un espacio central estuvo dedicado a la voz de pacientes, familias y activistas, quienes compartieron una mirada cr\u00edtica y propositiva frente a los desaf\u00edos que plantea esta enfermedad.<\/p>

Las disertaciones contaron con la participaci\u00f3n de:<\/strong><\/p>

Alexis Descourvieres (Mam\u00e1s y Pap\u00e1s contra Gliomas \u2013 ALAPA, CRIO)<\/p>

-Dr. Yohei Mineharu (Kyoto University)<\/p>

-Dr. Pablo Scodeller (Instituto de Qu\u00edmica Avanzada de Catalu\u00f1a, IQAC-CSIC)<\/p>

-Dr. Luis Ibarra (Universidad Nacional de R\u00edo Cuarto \u2013 CONICET)<\/p>

-Dra. Hebe Dur\u00e1n (CNEA-CONICET, CRIO)<\/p>

-Dr. Andr\u00e9s J. Kreiner (CNEA-CONICET, CRIO)<\/p>

-Dr. Pedro Lowenstein (University of Michigan)<\/p>

-Dra. Mar\u00eda C. Castro (University of Michigan)<\/p>

-Dra. Fabiana Lubieniecki (Hospital Garrahan)<\/p>

El Comit\u00e9 Organizador estuvo integrado<\/strong> por la Dra. Marianela Candolfi, la Dra. Hebe Dur\u00e1n, la Dra. Irene L. Iba\u00f1ez y la Dra. Marina Perona, con el apoyo t\u00e9cnico y humano de Ariel Peloni, Carina Bufaino, Carolina Oliveto, Florencia Braga Men\u00e9ndez y el Dr. Javier Santos.<\/p>

Desde la organizaci\u00f3n, destacaron que en las historias destacadas y en el canal de YouTube de ALAPA ya se encuentran disponibles los res\u00famenes y videos completos de las presentaciones.<\/p>

La jornada cerr\u00f3 con un mensaje de agradecimiento a todas las personas que hicieron posible este encuentro y con el compromiso de seguir trabajando en red para transformar la realidad de los gliomas.<\/p><\/div>

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El pasado martes 12 de agosto se llev\u00f3 a cabo la \ud835\udfd1\u2027\u00aa \ud835\udc09\ud835\udc28\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc1d\ud835\udc1a \ud835\udc00\ud835\udc2b\ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc1a \ud835\udc1d\ud835\udc1e \ud835\udc06\ud835\udc25\ud835\udc22\ud835\udc28\ud835\udc26\ud835\udc1a\ud835\udc2c en el Centro At\u00f3mico Constituyentes de la CNEA, un encuentro h\u00edbrido, gratuito y abierto[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":10054,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[3,138,7],"tags":[],"class_list":["post-10045","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-eventos","category-noticias","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10045","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=10045"}],"version-history":[{"count":8,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10045\/revisions"}],"predecessor-version":[{"id":10112,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10045\/revisions\/10112"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/10054"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=10045"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=10045"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=10045"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}