{"id":10099,"date":"2025-09-04T15:33:21","date_gmt":"2025-09-04T13:33:21","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10099"},"modified":"2025-09-04T16:27:20","modified_gmt":"2025-09-04T14:27:20","slug":"fundacion-felch-comparte-%f0%9d%90%87%f0%9d%90%a2%f0%9d%90%ac%f0%9d%90%ad%f0%9d%90%a8%f0%9d%90%ab%f0%9d%90%a2%f0%9d%90%9c%f0%9d%90%a8-%f0%9d%90%9a%f0%9d%90%af%f0%9d%90%9a%f0%9d%90%a7","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/09\/04\/fundacion-felch-comparte-%f0%9d%90%87%f0%9d%90%a2%f0%9d%90%ac%f0%9d%90%ad%f0%9d%90%a8%f0%9d%90%ab%f0%9d%90%a2%f0%9d%90%9c%f0%9d%90%a8-%f0%9d%90%9a%f0%9d%90%af%f0%9d%90%9a%f0%9d%90%a7\/","title":{"rendered":"Fundaci\u00f3n Felch comparte: Hist\u00f3rico avance en Chile: se Promulg\u00f3 \ud835\udc25\ud835\udc1a \ud835\udc0b\ud835\udc1e\ud835\udc32 \ud835\udc1d\ud835\udc1e \ud835\udc04\ud835\udc27\ud835\udc1f\ud835\udc1e\ud835\udc2b\ud835\udc26\ud835\udc1e\ud835\udc1d\ud835\udc1a\ud835\udc1d\ud835\udc1e\ud835\udc2c \ud835\udc0f\ud835\udc28\ud835\udc1c\ud835\udc28 \ud835\udc05\ud835\udc2b\ud835\udc1e\ud835\udc1c\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc2d\ud835\udc1e\ud835\udc2c"},"content":{"rendered":"<p>En mayo de 2025, en el Palacio de La Moneda, vivimos un momento hist\u00f3rico:<\/p>\n<p>se promulg\u00f3 \ud835\udc25\ud835\udc1a \ud835\udc0b\ud835\udc1e\ud835\udc32 \ud835\udc1d\ud835\udc1e \ud835\udc04\ud835\udc27\ud835\udc1f\ud835\udc1e\ud835\udc2b\ud835\udc26\ud835\udc1e\ud835\udc1d\ud835\udc1a\ud835\udc1d\ud835\udc1e\ud835\udc2c \ud835\udc0f\ud835\udc28\ud835\udc1c\ud835\udc28 \ud835\udc05\ud835\udc2b\ud835\udc1e\ud835\udc1c\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc2d\ud835\udc1e\ud835\udc2c, \ud835\udc11\ud835\udc1a\ud835\udc2b\ud835\udc1a\ud835\udc2c \ud835\udc28 <strong>Hu\u00e9rfanas<\/strong> (\ud835\udc0b\ud835\udc1e\ud835\udc32 \ud835\udc0d\u00b0 \ud835\udfd0\ud835\udfcf\u2027\ud835\udfd5\ud835\udfd2\ud835\udfd1, en una ceremonia encabezada por el presidente Gabriel Boric y acompa\u00f1ados por numerosas organizaciones de pacientes, autoridades de salud, senadores y diputados.<\/p>\n<p>Este hito marca un avance fundamental para las personas con enfermedades raras en Chile, \ud835\udc1f\ud835\udc2b\ud835\udc2e\ud835\udc2d\ud835\udc28 \ud835\udc1d\ud835\udc1e <strong>m\u00e1s<\/strong> \ud835\udc1d\ud835\udc1e \ud835\udc2e\ud835\udc27\ud835\udc1a <strong>d\u00e9cada<\/strong> \ud835\udc1d\ud835\udc1e \ud835\udc2d\ud835\udc2b\ud835\udc1a\ud835\udc1b\ud835\udc1a\ud835\udc23\ud835\udc28 \ud835\udc1c\ud835\udc28\ud835\udc27\ud835\udc2c\ud835\udc2d\ud835\udc1a\ud835\udc27\ud835\udc2d\ud835\udc1e \ud835\udc32 <strong>colaboraci\u00f3n<\/strong> \ud835\udc1e\ud835\udc27\ud835\udc2d\ud835\udc2b\ud835\udc1e \ud835\udc25\ud835\udc1a \ud835\udc2c\ud835\udc28\ud835\udc1c\ud835\udc22\ud835\udc1e\ud835\udc1d\ud835\udc1a\ud835\udc1d \ud835\udc1c\ud835\udc22\ud835\udc2f\ud835\udc22\ud835\udc25 \ud835\udc32 \ud835\udc1a\ud835\udc1c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc1e\ud835\udc2c <strong>p\u00fablicos.<\/strong><\/p>\n<p>Desde Fundaci\u00f3n FELCH, una de las agrupaciones pioneras en visibilizar estas patolog\u00edas en el pa\u00eds, nos sentimos orgullosos de haber estado presentes en este momento tan significativo.<\/p>\n<p>\ud835\udc0b\ud835\udc1a \ud835\udc27\ud835\udc2e\ud835\udc1e\ud835\udc2f\ud835\udc1a \ud835\udc25\ud835\udc1e\ud835\udc32 \ud835\udc2c\ud835\udc22\ud835\udc1e\ud835\udc27\ud835\udc2d\ud835\udc1a \ud835\udc25\ud835\udc1a\ud835\udc2c \ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc2c \ud835\udc29\ud835\udc1a\ud835\udc2b\ud835\udc1a \ud835\udc2e\ud835\udc27\ud835\udc1a<strong> pol\u00edtica p\u00fablica<\/strong> <strong>m\u00e1s<\/strong> \ud835\udc2b\ud835\udc28\ud835\udc1b\ud835\udc2e\ud835\udc2c\ud835\udc2d\ud835\udc1a: crea un listado oficial de enfermedades poco frecuentes, establece un Registro Nacional de Pacientes y consolida una Comisi\u00f3n T\u00e9cnica Asesora que orientar\u00e1 al Ministerio de Salud.<\/p>\n<div style=\"width: 640px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-10099-1\" width=\"640\" height=\"640\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/felch-aplausos.mp4?_=1\" \/><a href=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/felch-aplausos.mp4\">https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/felch-aplausos.mp4<\/a><\/video><\/div>\n","protected":false},"excerpt":{"rendered":"<p>En mayo de 2025, en el Palacio de La Moneda, vivimos un momento hist\u00f3rico: se promulg\u00f3 \ud835\udc25\ud835\udc1a \ud835\udc0b\ud835\udc1e\ud835\udc32 \ud835\udc1d\ud835\udc1e \ud835\udc04\ud835\udc27\ud835\udc1f\ud835\udc1e\ud835\udc2b\ud835\udc26\ud835\udc1e\ud835\udc1d\ud835\udc1a\ud835\udc1d\ud835\udc1e\ud835\udc2c \ud835\udc0f\ud835\udc28\ud835\udc1c\ud835\udc28 \ud835\udc05\ud835\udc2b\ud835\udc1e\ud835\udc1c\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc2d\ud835\udc1e\ud835\udc2c, \ud835\udc11\ud835\udc1a\ud835\udc2b\ud835\udc1a\ud835\udc2c \ud835\udc28 Hu\u00e9rfanas (\ud835\udc0b\ud835\udc1e\ud835\udc32 \ud835\udc0d\u00b0 \ud835\udfd0\ud835\udfcf\u2027\ud835\udfd5\ud835\udfd2\ud835\udfd1, en una<a href=\"https:\/\/aliber.org\/web\/2025\/09\/04\/fundacion-felch-comparte-%f0%9d%90%87%f0%9d%90%a2%f0%9d%90%ac%f0%9d%90%ad%f0%9d%90%a8%f0%9d%90%ab%f0%9d%90%a2%f0%9d%90%9c%f0%9d%90%a8-%f0%9d%90%9a%f0%9d%90%af%f0%9d%90%9a%f0%9d%90%a7\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":10101,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[138,7],"tags":[],"class_list":["post-10099","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10099","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=10099"}],"version-history":[{"count":5,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10099\/revisions"}],"predecessor-version":[{"id":10107,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10099\/revisions\/10107"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/10101"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=10099"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=10099"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=10099"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}