{"id":10141,"date":"2025-09-08T14:59:53","date_gmt":"2025-09-08T12:59:53","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10141"},"modified":"2025-09-08T15:01:29","modified_gmt":"2025-09-08T13:01:29","slug":"%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1-11","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/09\/08\/%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1-11\/","title":{"rendered":"\ud835\uddd6\ud835\uddfc\ud835\uddfb\ud835\uddfc\ud835\uddf0\ud835\uddf2 \ud835\uddf9\ud835\uddee\ud835\ude00 \ud835\uddf2\ud835\uddfb\ud835\ude01\ud835\uddf6\ud835\uddf1\ud835\uddee\ud835\uddf1\ud835\uddf2\ud835\ude00 \ud835\uddfe\ud835\ude02\ud835\uddf2 \ud835\uddf3\ud835\uddfc\ud835\uddff\ud835\uddfa\ud835\uddee\ud835\uddfb \ud835\uddfd\ud835\uddee\ud835\uddff\ud835\ude01\ud835\uddf2 \ud835\uddf1\ud835\uddf2 \ud835\uddd4\ud835\udddf\ud835\udddc\ud835\uddd5\ud835\uddd8\ud835\udde5"},"content":{"rendered":"
\n
\ud835\udc0b\ud835\udc1a \ud835\udc05\ud835\udc2e\ud835\udc27\ud835\udc1d\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27 \ud835\udc02\ud835\udc28\ud835\udc2b\ud835\udc27\ud835\udc1e\ud835\udc25\ud835\udc22\ud835\udc1a \ud835\udc1d\ud835\udc1e \ud835\udc0b\ud835\udc1a\ud835\udc27\ud835\udc20\ud835\udc1e (\ud835\udc02\ud835\udc1d\ud835\udc0b\ud835\udc12) trabaja para llegar a cada colombiano con s\u00edndrome de Cornelia de Lange y otras enfermedades de baja ocurrencia que generan discapacidad, brindando asesoramiento y acompa\u00f1amiento en el diagn\u00f3stico y tratamiento, promoviendo adem\u00e1s una visi\u00f3n incluyente y correcta de la discapacidad.<\/p>\n

Busca optimizar el uso de los recursos p\u00fablicos mediante rutas claras de acceso y apoyo al equipo m\u00e9dico e investigativo.
\nAl mismo tiempo, impulsa la investigaci\u00f3n a trav\u00e9s de su Programa de Peque\u00f1os Subsidios en \u00e1reas como conducta, diagn\u00f3stico prenatal y envejecimiento en adultos, y mantiene alianzas con destacados m\u00e9dicos, investigadores e instituciones cient\u00edficas de prestigio internacional.<\/p>\n

\u00a1\u00danete a ALIBER! escr\u00edbenos a:
\n\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20
\npara que te guiemos en el proceso de adherirte a nuestra Alianza.<\/p>\n

Somos una red que agremia m\u00e1s de 700 organizaciones de pacientes con Enfermedades Raras, presente en 19 pa\u00edses de Iberoam\u00e9rica, que coordina acciones para fortalecer el movimiento asociativo, dar visibilidad a las EERR y representar a las personas con Enfermedades Poco Frecuentes de Iberoam\u00e9rica ante organismos locales, regionales, nacionales e internacionales, creando un espacio de colaboraci\u00f3n conjunta y permanente para compartir conocimientos, experiencias y buenas pr\u00e1cticas en las \u00e1reas social, sanitaria, educativa y laboral.<\/p><\/div>\n<\/div>\n

<\/div>\n
\n
<\/div>\n<\/div>\n
\"\"<\/div>\n","protected":false},"excerpt":{"rendered":"

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