{"id":10211,"date":"2025-09-10T14:49:37","date_gmt":"2025-09-10T12:49:37","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10211"},"modified":"2025-09-10T14:49:37","modified_gmt":"2025-09-10T12:49:37","slug":"conoce-las-entidades-que-forman-parte-de-aliber","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/09\/10\/conoce-las-entidades-que-forman-parte-de-aliber\/","title":{"rendered":"Conoce las Entidades que forman parte de ALIBER"},"content":{"rendered":"<p>La Fundacion <span class=\"html-span xdj266r x14z9mp xat24cr x1lziwak xexx8yu xyri2b x18d9i69 x1c1uobl x1hl2dhg x16tdsg8 x1vvkbs\"><a class=\"x1i10hfl xjbqb8w x1ejq31n x18oe1m7 x1sy0etr xstzfhl x972fbf x10w94by x1qhh985 x14e42zd x9f619 x1ypdohk xt0psk2 x3ct3a4 xdj266r x14z9mp xat24cr x1lziwak xexx8yu xyri2b x18d9i69 x1c1uobl x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz xkrqix3 x1sur9pj xzsf02u x1s688f\" tabindex=\"0\" role=\"link\" href=\"https:\/\/www.facebook.com\/mundo.corneliacr?__tn__=-]K*F\"><span class=\"xt0psk2\"><span class=\"xjp7ctv\">Nuestro mundo Cornelia de Lange Costa Rica<\/span><\/span><\/a><\/span>\u00a0representa a las familias costarricenses diagnosticadas con el \ud835\udc12\ud835\udc22\u0301\ud835\udc27\ud835\udc1d\ud835\udc2b\ud835\udc28\ud835\udc26\ud835\udc1e \ud835\udc02\ud835\udc28\ud835\udc2b\ud835\udc27\ud835\udc1e\ud835\udc25\ud835\udc22\ud835\udc1a \ud835\udc1d\ud835\udc1e \ud835\udc0b\ud835\udc1a\ud835\udc27\ud835\udc20\ud835\udc1e (\ud835\udc12\ud835\udc02\ud835\udc1d\ud835\udc0b). Su labor se centra en dar testimonio de esta extraordinaria condici\u00f3n y en mostrar una visi\u00f3n positiva ante cada reto cotidiano, otorgando al SCdL un lugar especial que las define de muchas maneras.<br class=\"html-br\" \/><br class=\"html-br\" \/>Aunque los desaf\u00edos son complejos, no se perciben como limitaciones, sino como oportunidades para explorar la diversidad desde distintas perspectivas, valorando cada experiencia con un esp\u00edritu regenerador, alegre y \u00fanico.<br class=\"html-br\" \/>Su filosof\u00eda de vivir un d\u00eda a la vez impulsa a superar el miedo, la excusa, el conformismo y la ignorancia.<br class=\"html-br\" \/><br class=\"html-br\" \/>En su camino no existe el \u201cno puedo\u201d, pues los ni\u00f1os con SCdL enfrentan y superan m\u00faltiples batallas. En cada familia reconocen un llamado a transformar actitudes y, guiados por la convicci\u00f3n, se entregan con compromiso y amor para ofrecer lo mejor a sus peque\u00f1os.<br class=\"html-br\" \/><br class=\"html-br\" \/>\u00a1\u00danete a ALIBER! escr\u00edbenos a:<br class=\"html-br\" \/><a href=\"http:\/\/\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20\">\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20<\/a><\/p>\n<p>para que te guiemos en el proceso de adherirte a nuestra Alianza.<br class=\"html-br\" \/><br class=\"html-br\" \/>Somos una red que agremia m\u00e1s de 700 organizaciones de pacientes con Enfermedades Raras, presente en 19 pa\u00edses de Iberoam\u00e9rica, que coordina acciones para fortalecer el movimiento asociativo, dar visibilidad a las EERR y representar a las personas con Enfermedades Poco Frecuentes de Iberoam\u00e9rica ante organismos locales, regionales, nacionales e internacionales, creando un espacio de colaboraci\u00f3n conjunta y permanente para compartir conocimientos, experiencias y buenas pr\u00e1cticas en las \u00e1reas social, sanitaria, educativa y laboral.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-10212 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/Nuestro-mundo-Cornelia-de-Lange.jpeg\" alt=\"\" width=\"1080\" height=\"1350\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/Nuestro-mundo-Cornelia-de-Lange.jpeg 1080w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/Nuestro-mundo-Cornelia-de-Lange-240x300.jpeg 240w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/Nuestro-mundo-Cornelia-de-Lange-819x1024.jpeg 819w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/Nuestro-mundo-Cornelia-de-Lange-768x960.jpeg 768w\" sizes=\"(max-width: 1080px) 100vw, 1080px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>La Fundacion Nuestro mundo Cornelia de Lange Costa Rica\u00a0representa a las familias costarricenses diagnosticadas con el \ud835\udc12\ud835\udc22\u0301\ud835\udc27\ud835\udc1d\ud835\udc2b\ud835\udc28\ud835\udc26\ud835\udc1e \ud835\udc02\ud835\udc28\ud835\udc2b\ud835\udc27\ud835\udc1e\ud835\udc25\ud835\udc22\ud835\udc1a \ud835\udc1d\ud835\udc1e \ud835\udc0b\ud835\udc1a\ud835\udc27\ud835\udc20\ud835\udc1e (\ud835\udc12\ud835\udc02\ud835\udc1d\ud835\udc0b). Su labor se centra en dar testimonio de esta<a href=\"https:\/\/aliber.org\/web\/2025\/09\/10\/conoce-las-entidades-que-forman-parte-de-aliber\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":10212,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,138,7],"tags":[],"class_list":["post-10211","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-noticias","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10211","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=10211"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10211\/revisions"}],"predecessor-version":[{"id":10213,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10211\/revisions\/10213"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/10212"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=10211"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=10211"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=10211"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}