{"id":10325,"date":"2025-09-18T16:34:23","date_gmt":"2025-09-18T14:34:23","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10325"},"modified":"2025-09-18T16:35:47","modified_gmt":"2025-09-18T14:35:47","slug":"conoce-la-entidades-que-forman-parte-de-aliber-2","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/09\/18\/conoce-la-entidades-que-forman-parte-de-aliber-2\/","title":{"rendered":"Conoce la entidades que forman parte de ALIBER"},"content":{"rendered":"
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
<\/div>\n
\n
\n

La Fundaci\u00f3n Poco Frecuente<\/strong> es una organizaci\u00f3n sin fines de lucro de Almer\u00eda, Espa\u00f1a, que desde 2017 trabaja para dar visibilidad a las enfermedades poco frecuentes, impulsar la investigaci\u00f3n y acompa\u00f1ar a las familias que conviven con estos diagn\u00f3sticos.<\/p>\n

A trav\u00e9s de proyectos educativos, culturales y de apoyo, promueve la inclusi\u00f3n social y la sensibilizaci\u00f3n, defendiendo el uso del t\u00e9rmino \u201cpoco frecuente\u201d para poner el foco en las personas y no en la rareza de la enfermedad.<\/p>\n

 <\/p>\n

\u00a1\u00danete a ALIBER! escr\u00edbenos a:
\n\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20
\npara que te guiemos en el proceso de adherirte a nuestra Alianza.<\/p>\n

Somos una red que agremia m\u00e1s de 700 organizaciones de pacientes con Enfermedades Raras, presente en 19 pa\u00edses de Iberoam\u00e9rica, que coordina acciones para fortalecer el movimiento asociativo, dar visibilidad a las EERR y representar a las personas con Enfermedades Poco Frecuentes de Iberoam\u00e9rica ante organismos locales, regionales, nacionales e internacionales, creando un espacio de colaboraci\u00f3n conjunta y permanente para compartir conocimientos, experiencias y buenas pr\u00e1cticas en las \u00e1reas social, sanitaria, educativa y laboral.<\/p>\n<\/div>\n<\/div>\n

\"\"<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
\n
<\/div>\n
<\/div>\n<\/div>\n<\/div>\n
\n
<\/div>\n
<\/div>\n<\/div>\n
\n
\n
\n
\n
\n
\n
\n
<\/div>\n
<\/div>\n
<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
\n
<\/div>\n
\n
\n
\n
<\/div>\n
\n
\n
\n
\n
<\/div>\n<\/div>\n<\/div>\n
\n
\n
\n
<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

La Fundaci\u00f3n Poco Frecuente es una organizaci\u00f3n sin fines de lucro de Almer\u00eda, Espa\u00f1a, que desde 2017 trabaja para dar visibilidad a las enfermedades poco frecuentes, impulsar la investigaci\u00f3n y[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":10326,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,138,7],"tags":[],"class_list":["post-10325","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-noticias","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10325","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=10325"}],"version-history":[{"count":2,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10325\/revisions"}],"predecessor-version":[{"id":10328,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10325\/revisions\/10328"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/10326"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=10325"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=10325"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=10325"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}