{"id":10336,"date":"2025-09-18T18:08:23","date_gmt":"2025-09-18T16:08:23","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10336"},"modified":"2025-09-18T18:08:23","modified_gmt":"2025-09-18T16:08:23","slug":"webinar-regional-de-la-resolucion-de-la-ams-a-la-accion-proximos-pasos-para-america-latina-y-el-caribe-webinar-regional-da-resolucao-da-ams-a-acao-proximos-passos-para-a-america-latina-e-o-carib","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/09\/18\/webinar-regional-de-la-resolucion-de-la-ams-a-la-accion-proximos-pasos-para-america-latina-y-el-caribe-webinar-regional-da-resolucao-da-ams-a-acao-proximos-passos-para-a-america-latina-e-o-carib\/","title":{"rendered":"Webinar Regional | De la Resoluci\u00f3n de la AMS a la Acci\u00f3n: Pr\u00f3ximos Pasos para Am\u00e9rica Latina y el Caribe\/Webinar Regional | Da Resolu\u00e7\u00e3o da AMS \u00e0 A\u00e7\u00e3o: Pr\u00f3ximos Passos para a Am\u00e9rica Latina e o Caribe"},"content":{"rendered":"

Junto con la Alianza Iberoamericana de Enfermedades Raras o Poco Frecuentes (ALIBER), ERCAL \u2013 Enfermedades Raras en el Caribe y Am\u00e9rica Latina, y Casa Hunter \u2013 Associa\u00e7\u00e3o Brasileira de Doen\u00e7as Raras, unimos a miembros de toda Am\u00e9rica Latina y el Caribe para transformar la Resoluci\u00f3n de la AMS sobre Enfermedades Raras en acciones concretas para nuestras comunidades.<\/p>\n

 <\/p>\n

25 de Septiembre de 2025<\/strong><\/p>\n

17:00 CEST (UTC+2)<\/p>\n

\ud83c\uddf2\ud83c\uddfd Ciudad de M\u00e9xico 09:00 | \ud83c\udde8\ud83c\uddf4 Bogot\u00e1 10:00 | \ud83c\udde9\ud83c\uddf4 Rep\u00fablica Dominicana 11:00 | \ud83c\udde7\ud83c\uddf7 S\u00e3o Paulo 12:00<\/p>\n

 <\/p>\n

El webinar se realizar\u00e1 en ingl\u00e9s, espa\u00f1ol y portugu\u00e9s.<\/strong><\/p>\n

 <\/p>\n

Ponentes:<\/strong><\/p>\n

Juan Carri\u00f3n Tudela, Presidente, ALIBER<\/p>\n

Diego Fernando Gil Cardozo, Director Ejecutivo, ERCAL<\/p>\n

Andreia Bessa, Coordinadora del Departamento Jur\u00eddico, Casa Hunter<\/p>\n

Alexandra Heumber Perry, Directora General, Rare Diseases International<\/p>\n

Alanna Miller, Coordinadora de Pol\u00edtica Global, Rare Diseases International<\/p>\n

Debra Bellon, Responsable de Participaci\u00f3n Estrat\u00e9gica, Rare Diseases International<\/p>\n

Alba Parejo, Asistente de Participaci\u00f3n Estrat\u00e9gica, Rare Diseases International<\/p>\n

 <\/p>\n

Para registrarse:<\/strong>\u00a0https:\/\/us02web.zoom.us\/webinar\/register\/WN_re9J8IONRbSgxDtl_fnYnw#\/registration<\/a><\/p>\n

#EnfermedadesRaras #RareDiseases #Am\u00e9ricaLatina #LatinAmerica<\/p>\n

#Caribe #Resoluci\u00f3nAMS #WHAResolution<\/p>\n

\"\"<\/p>\n

 <\/p>\n

Webinar Regional | Da Resolu\u00e7\u00e3o da AMS \u00e0 A\u00e7\u00e3o: Pr\u00f3ximos Passos para a Am\u00e9rica Latina e o Caribe<\/strong><\/p>\n

 <\/p>\n

Junto com a Alian\u00e7a Ibero-Americana de Doen\u00e7as Raras ou Pouco Frequentes (ALIBER), a ERCAL \u2013 Doen\u00e7as Raras no Caribe e Am\u00e9rica Latina, e a Casa Hunter \u2013 Associa\u00e7\u00e3o Brasileira de Doen\u00e7as Raras, unimos membros de toda a Am\u00e9rica Latina e o Caribe para transformar a Resolu\u00e7\u00e3o da AMS sobre Doen\u00e7as Raras em a\u00e7\u00f5es concretas para nossas comunidades.<\/p>\n

 <\/p>\n

25 de setembro de 2025<\/strong><\/p>\n

17:00 CEST (UTC+2)<\/p>\n

\ud83c\uddf2\ud83c\uddfd Cidade do M\u00e9xico 09:00 | \ud83c\udde8\ud83c\uddf4 Bogot\u00e1 10:00 | \ud83c\udde9\ud83c\uddf4 Rep\u00fablica Dominicana 11:00 | \ud83c\udde7\ud83c\uddf7 S\u00e3o Paulo 12:00<\/p>\n

 <\/p>\n

O webinar ser\u00e1 realizado em ingl\u00eas, espanhol e portugu\u00eas.<\/strong><\/p>\n

 <\/p>\n

Palestrantes:<\/strong><\/p>\n

Juan Carri\u00f3n Tudela, Presidente, ALIBER<\/p>\n

Diego Fernando Gil Cardozo, Diretor Executivo, ERCAL<\/p>\n

Andreia Bessa, Coordenadora do Departamento Jur\u00eddico, Casa Hunter<\/p>\n

Alexandra Heumber Perry, Diretora-Geral, Rare Diseases International<\/p>\n

Alanna Miller, Coordenadora de Pol\u00edtica Global, Rare Diseases International<\/p>\n

Debra Bellon, Respons\u00e1vel pela Participa\u00e7\u00e3o Estrat\u00e9gica, Rare Diseases International<\/p>\n

Alba Parejo, Assistente de Participa\u00e7\u00e3o Estrat\u00e9gica, Rare Diseases International<\/p>\n

 <\/p>\n

Inscreva-se:\u00a0https:\/\/us02web.zoom.us\/webinar\/register\/WN_re9J8IONRbSgxDtl_fnYnw#\/registration<\/a><\/p>\n

 <\/p>\n

#Doen\u00e7asRaras #RareDiseases #Am\u00e9ricaLatina #LatinAmerica<\/p>\n

#Caribe #Resolu\u00e7\u00e3oAMS #WHAResolution<\/p>\n

\"\"<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Junto con la Alianza Iberoamericana de Enfermedades Raras o Poco Frecuentes (ALIBER), ERCAL \u2013 Enfermedades Raras en el Caribe y Am\u00e9rica Latina, y Casa Hunter \u2013 Associa\u00e7\u00e3o Brasileira de Doen\u00e7as[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":10338,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,8,3,138,7],"tags":[],"class_list":["post-10336","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-encuentros","category-eventos","category-noticias","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10336","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=10336"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10336\/revisions"}],"predecessor-version":[{"id":10340,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10336\/revisions\/10340"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/10338"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=10336"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=10336"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=10336"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}