{"id":10382,"date":"2025-09-24T16:23:18","date_gmt":"2025-09-24T14:23:18","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=10382"},"modified":"2025-09-24T16:23:45","modified_gmt":"2025-09-24T14:23:45","slug":"manana-sera-el-gran-dia-del-webinar-regional-de-rdi","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/09\/24\/manana-sera-el-gran-dia-del-webinar-regional-de-rdi\/","title":{"rendered":"Ma\u00f1ana ser\u00e1 el gran d\u00eda del Webinar Regional de RDI"},"content":{"rendered":"<p><strong>Ma\u00f1ana, 25 de septiembre<\/strong>, se llevar\u00e1 a cabo el <strong>Webinar Regional \u201cDe la Resoluci\u00f3n de la AMS a la Acci\u00f3n:<\/strong> Pr\u00f3ximos Pasos para Am\u00e9rica Latina y el Caribe\u201d, un encuentro clave para avanzar en la implementaci\u00f3n de la Resoluci\u00f3n de la Asamblea Mundial de la Salud (AMS) sobre enfermedades raras.<\/p>\n<p><strong>En representaci\u00f3n de ALIBER, participar\u00e1 nuestropresidente Juan Carri\u00f3n Tudela<\/strong>, junto a l\u00edderes de organizaciones de toda la regi\u00f3n como ERCAL \u2013 Enfermedades Raras en el Caribe y Am\u00e9rica Latina y Casa Hunter de Brasil, unidos con Rare Diseases International (RDI) para transformar este hist\u00f3rico compromiso en acciones concretas para nuestras comunidades.<\/p>\n<p>\ud83d\uddd3 25 de septiembre de 2025<br \/>\n\u23f0 17:00 CEST (UTC+2)<br \/>\nHorarios locales: Ciudad de M\u00e9xico 09:00 | Bogot\u00e1 10:00 | Rep\u00fablica Dominicana 11:00 | S\u00e3o Paulo 12:00<\/p>\n<p>\ud83c\udf0e El webinar contar\u00e1 con interpretaci\u00f3n en ingl\u00e9s, espa\u00f1ol y portugu\u00e9s.<\/p>\n<p>Ponentes destacados:<\/p>\n<p>. Juan Carri\u00f3n Tudela (ALIBER)<\/p>\n<p>\u00b7 Diego Fernando Gil Cardozo (ERCAL)<\/p>\n<p>\u00b7 Andreia Bessa (Casa Hunter)<\/p>\n<p>\u00b7 Alexandra Heumber Perry<\/p>\n<p>\u00b7 Alanna Miller \u00b7 Debra Bellon<\/p>\n<p>\u00b7 Alba Parejo (Rare Diseases International).<\/p>\n<p>Registro gratuito:<a href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_re9J8IONRbSgxDtl_fnYnw#\/registration\">https:\/\/us02web.zoom.us\/webinar\/register\/WN_re9J8IONRbSgxDtl_fnYnw#\/registration<\/a><\/p>\n<p>formulario para que las entidades que lo deseen se unan a los grupos de trabajo:<\/p>\n<p><a href=\"https:\/\/forms.office.com\/pages\/responsepage.aspx?id=BSoke_7iBkuzB4HHbmnbGY8MTTOc06dImzPtow87Yg5UMFJZVzFWVUMyUzJUVk5JNkdPTjZCR1o3WS4u&amp;route=shorturl\">https:\/\/forms.office.com\/pages\/responsepage.aspx?id=BSoke_7iBkuzB4HHbmnbGY8MTTOc06dImzPtow87Yg5UMFJZVzFWVUMyUzJUVk5JNkdPTjZCR1o3WS4u&amp;route=shorturl<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>#EnfermedadesRaras #RareDiseases #Am\u00e9ricaLatina #Caribe #Resoluci\u00f3nAMS #wharesolution<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-10383 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/rdi.jpeg\" alt=\"\" width=\"1280\" height=\"720\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/rdi.jpeg 1280w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/rdi-300x169.jpeg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/rdi-1024x576.jpeg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/rdi-768x432.jpeg 768w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/><\/p>\n<p>&nbsp;<\/p>\n<a href=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/09\/Agenda-LATAM-Webinar-Regional.pdf\" class=\"pdfemb-viewer\" style=\"\" data-width=\"max\" data-height=\"max\" data-toolbar=\"bottom\" data-toolbar-fixed=\"off\">Agenda LATAM Webinar Regional<\/a>\n","protected":false},"excerpt":{"rendered":"<p>Ma\u00f1ana, 25 de septiembre, se llevar\u00e1 a cabo el Webinar Regional \u201cDe la Resoluci\u00f3n de la AMS a la Acci\u00f3n: Pr\u00f3ximos Pasos para Am\u00e9rica Latina y el Caribe\u201d, un encuentro<a href=\"https:\/\/aliber.org\/web\/2025\/09\/24\/manana-sera-el-gran-dia-del-webinar-regional-de-rdi\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":10383,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,8,3,138],"tags":[],"class_list":["post-10382","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-encuentros","category-eventos","category-noticias"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10382","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=10382"}],"version-history":[{"count":2,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10382\/revisions"}],"predecessor-version":[{"id":10386,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/10382\/revisions\/10386"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/10383"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=10382"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=10382"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=10382"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}