{"id":11096,"date":"2026-05-22T23:35:49","date_gmt":"2026-05-22T21:35:49","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=11096"},"modified":"2026-05-23T04:30:39","modified_gmt":"2026-05-23T02:30:39","slug":"iberoamerica-avanza-unida-por-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2026\/05\/22\/iberoamerica-avanza-unida-por-las-enfermedades-raras\/","title":{"rendered":"Iberoam\u00e9rica avanza unida por las Enfermedades Raras"},"content":{"rendered":"<p>Hace unos d\u00edas, en el marco de la XVII Conferencia Iberoamericana de Salud celebrada en Madrid, las enfermedades raras han sido reconocidas como una prioridad de salud p\u00fablica para la regi\u00f3n.<\/p>\n<p>Desde ALIBER \u2014la Alianza Iberoamericana de Enfermedades Raras\u2014 seguimos impulsando una respuesta conjunta para m\u00e1s de 47 millones de personas y sus familias en Iberoam\u00e9rica.<\/p>\n<p>\ud83e\udde9 Diagn\u00f3stico temprano<br \/>\n\ud83d\udcca Datos compartidos<br \/>\n\ud83d\udc8a Acceso equitativo a tratamientos<br \/>\n\ud83e\udd1d Cooperaci\u00f3n entre pa\u00edses<\/p>\n<p>Porque trabajar juntos nos permite reducir desigualdades, compartir soluciones y acelerar respuestas reales para las personas que conviven con enfermedades raras, independientemente del pa\u00eds en el que vivan.<\/p>\n<p>Con la participaci\u00f3n de representantes de 17 pa\u00edses, instituciones internacionales y organizaciones de pacientes, este encuentro supone un paso hist\u00f3rico para avanzar hacia estrategias comunes que sit\u00faen a las personas en el centro de las pol\u00edticas de salud.<\/p>\n<p>Porque hablar de enfermedades raras es hablar de equidad, dignidad y derechos.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-11097 \" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/FCO0175-scaled.jpg\" alt=\"\" width=\"852\" height=\"568\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/FCO0175-scaled.jpg 2560w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/FCO0175-300x200.jpg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/FCO0175-1024x683.jpg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/FCO0175-768x512.jpg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/FCO0175-1536x1024.jpg 1536w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/FCO0175-2048x1365.jpg 2048w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/FCO0175-750x500.jpg 750w\" sizes=\"(max-width: 852px) 100vw, 852px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" class=\"aligncenter wp-image-11098 \" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/3.jpeg\" alt=\"\" width=\"850\" height=\"566\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/3.jpeg 1600w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/3-300x200.jpeg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/3-1024x682.jpeg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/3-768x512.jpeg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/3-1536x1023.jpeg 1536w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/05\/3-750x500.jpeg 750w\" sizes=\"(max-width: 850px) 100vw, 850px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Hace unos d\u00edas, en el marco de la XVII Conferencia Iberoamericana de Salud celebrada en Madrid, las enfermedades raras han sido reconocidas como una prioridad de salud p\u00fablica para la<a href=\"https:\/\/aliber.org\/web\/2026\/05\/22\/iberoamerica-avanza-unida-por-las-enfermedades-raras\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":11098,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,3,138],"tags":[],"class_list":["post-11096","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-eventos","category-noticias"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/11096","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=11096"}],"version-history":[{"count":3,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/11096\/revisions"}],"predecessor-version":[{"id":11116,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/11096\/revisions\/11116"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/11098"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=11096"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=11096"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=11096"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}