{"id":11382,"date":"2026-10-01T20:16:44","date_gmt":"2026-10-01T18:16:44","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=11382"},"modified":"2026-10-01T20:21:37","modified_gmt":"2026-10-01T18:21:37","slug":"aliber-cierra-con-exito-el-foro-iberoamericano-de-alto-nivel-en-enfermedades-raras-en-el-senado-de-la-republica-de-mexico","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2026\/10\/01\/aliber-cierra-con-exito-el-foro-iberoamericano-de-alto-nivel-en-enfermedades-raras-en-el-senado-de-la-republica-de-mexico\/","title":{"rendered":"ALIBER CIERRA CON \u00c9XITO EL FORO IBEROAMERICANO DE ALTO NIVEL EN ENFERMEDADES RARAS EN EL SENADO DE LA REP\u00daBLICA DE M\u00c9XICO"},"content":{"rendered":"<div class=\"xdj266r x14z9mp xat24cr x1lziwak x1vvkbs x126k92a\">\n<div dir=\"auto\">\n<p>La Alianza Iberoamericana de Enfermedades Raras \u2013 ALIBER, marc\u00f3 un hito y centr\u00f3 sus esfuerzos en trasladar un mensaje contundente en M\u00e9xico: Lograr avances en la atenci\u00f3n del colectivo con enfermedades raras y sin diagn\u00f3stico tanto en el pa\u00eds como en toda Iberoam\u00e9rica.<\/p>\n<ul>\n<li>Registro Nacional de Enfermedades Raras.<\/li>\n<li>Marco de protecci\u00f3n en la Ley General de Salud.<\/li>\n<li>Diagn\u00f3stico precoz y avance en el tamizaje neonatal.<\/li>\n<li>Equidad en el acceso a la atenci\u00f3n y tratamientos.<\/li>\n<li>Pol\u00edticas p\u00fablicas construidas desde la experiencia de los pacientes.<\/li>\n<\/ul>\n<p>M\u00e9xico e Iberoam\u00e9rica contin\u00faan trabajando en la hoja de ruta para transformar necesidades en compromisos que aseguren los derechos de los afectados por enfermedades raras y sin diagn\u00f3stico.<\/p>\n<p>La Alianza agradece el trabajo aunado de todos los actores que hicieron este encuentro posible, un encuentro que hace historia y marca l\u00edneas de trabajo.<\/p>\n<p><a href=\"https:\/\/www.facebook.com\/hashtag\/aliber?__cft__%5b0%5d=AZjGA88vPWBt1ZIwVGBKXPCv91-lZmKUt1mlCRTPxXuP6im0TZtRmUOwUx-MDV4Z1WCzWzVoYwdkSMYDCSYB95r3G_anZJWGTN3wcY50L2nnrVGgTiXAF_hxwdX-yDDFMjO_iE0U9l2LzPqCZ5i2cS1zbRe6NCG4dj_MyLGXuf7-aHbkjt-cu1mC-0Y&amp;__tn__=*NK-R\">#ALIBER<\/a><\/p>\n<p>&nbsp;<\/p>\n<\/div>\n<\/div>\n<div dir=\"auto\"><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-11385 \" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/24.jpeg\" alt=\"\" width=\"882\" height=\"588\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/24.jpeg 1600w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/24-300x200.jpeg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/24-1024x682.jpeg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/24-768x512.jpeg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/24-1536x1023.jpeg 1536w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/24-750x500.jpeg 750w\" sizes=\"(max-width: 882px) 100vw, 882px\" \/><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><img decoding=\"async\" class=\"aligncenter wp-image-11383 \" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/26.jpeg\" alt=\"\" width=\"882\" height=\"588\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/26.jpeg 1600w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/26-300x200.jpeg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/26-1024x682.jpeg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/26-768x512.jpeg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/26-1536x1023.jpeg 1536w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/26-750x500.jpeg 750w\" sizes=\"(max-width: 882px) 100vw, 882px\" \/><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><img decoding=\"async\" class=\"aligncenter wp-image-11384 \" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/25.jpeg\" alt=\"\" width=\"873\" height=\"582\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/25.jpeg 1600w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/25-300x200.jpeg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/25-1024x682.jpeg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/25-768x512.jpeg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/25-1536x1023.jpeg 1536w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/25-750x500.jpeg 750w\" sizes=\"(max-width: 873px) 100vw, 873px\" \/><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-11386 \" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/23.jpeg\" alt=\"\" width=\"874\" height=\"582\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/23.jpeg 1600w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/23-300x200.jpeg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/23-1024x682.jpeg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/23-768x512.jpeg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/23-1536x1023.jpeg 1536w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2026\/10\/23-750x500.jpeg 750w\" sizes=\"(max-width: 874px) 100vw, 874px\" \/><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>La Alianza Iberoamericana de Enfermedades Raras \u2013 ALIBER, marc\u00f3 un hito y centr\u00f3 sus esfuerzos en trasladar un mensaje contundente en M\u00e9xico: Lograr avances en la atenci\u00f3n del colectivo con enfermedades raras y sin diagn\u00f3stico tanto en el pa\u00eds como en toda Iberoam\u00e9rica. Registro Nacional de Enfermedades Raras. Marco de protecci\u00f3n en la Ley General<a href=\"https:\/\/aliber.org\/web\/2026\/10\/01\/aliber-cierra-con-exito-el-foro-iberoamericano-de-alto-nivel-en-enfermedades-raras-en-el-senado-de-la-republica-de-mexico\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":11385,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"footnotes":""},"categories":[2,3,138],"tags":[],"class_list":["post-11382","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-eventos","category-noticias"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/11382","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=11382"}],"version-history":[{"count":4,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/11382\/revisions"}],"predecessor-version":[{"id":11390,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/11382\/revisions\/11390"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/11385"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=11382"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=11382"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=11382"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}