{"id":4932,"date":"2020-05-14T15:40:46","date_gmt":"2020-05-14T13:40:46","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=4932"},"modified":"2020-05-14T15:40:46","modified_gmt":"2020-05-14T13:40:46","slug":"afectacion-de-la-pandemia-en-las-personas-con-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2020\/05\/14\/afectacion-de-la-pandemia-en-las-personas-con-enfermedades-raras\/","title":{"rendered":"Afectaci\u00f3n de la pandemia en las personas con enfermedades raras."},"content":{"rendered":"\n<p><strong>Por qu\u00e9 es importante para llenar la encuesta de Rare Barometer Voices.<\/strong><\/p>\n\n\n\n<p>ALIBER invita a participar en la charla con EURORDIS y RARE DISEASES INTERNATIONAL (RDI), sobre la encuesta de su experiencia como paciente de enfermedades raras y el COVID-19 en Latinoam\u00e9rica.<br>__<br>Descubriremos la importancia para los pa\u00edses latinos de responder la encuesta que tan solo&nbsp; tarda 15 minutos.<br>__<br>La charla es en espa\u00f1ol y portugu\u00e9s. Este es el enlace para realizar la encuesta: <\/p>\n\n\n\n<p><a href=\"https:\/\/www.eurordis.org\/voices\/es\">https:\/\/www.eurordis.org\/voices\/es<\/a><br>__<br>Viernes, 15 de Mayo a las 5pm hora Miami (EST)<\/p>\n\n\n\n<p>POR ZOOM:<\/p>\n\n\n\n<p><a href=\"https:\/\/us02web.zoom.us\/j\/83053885460?pwdejArQmtPSmxKZ0QwOU4xOEtmSUtqUT09\">https:\/\/us02web.zoom.us\/j\/83053885460?pwdejArQmtPSmxKZ0QwOU4xOEtmSUtqUT09<\/a><\/p>\n\n\n\n<p>#EnfermedadesRaras <\/p>\n\n\n\n<p>#EnfermedadesHu\u00e9rfanas <\/p>\n\n\n\n<p>#EPOF<\/p>\n\n\n\n<p>#Latinoamerica <\/p>\n\n\n\n<p>#Covid-19<\/p>\n\n\n\n<p>#Yomequedoencasa <\/p>\n\n\n\n<p>#Stayathome<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2020\/05\/FB_IMG_1589460222957-1024x1024.jpg\" alt=\"\" class=\"wp-image-4933\"\/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Por qu\u00e9 es importante para llenar la encuesta de Rare Barometer Voices. ALIBER invita a participar en la charla con EURORDIS y RARE DISEASES INTERNATIONAL (RDI), sobre la encuesta de<a href=\"https:\/\/aliber.org\/web\/2020\/05\/14\/afectacion-de-la-pandemia-en-las-personas-con-enfermedades-raras\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":2,"featured_media":4933,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,138],"tags":[],"class_list":["post-4932","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-noticias"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/4932","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=4932"}],"version-history":[{"count":0,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/4932\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=4932"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=4932"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=4932"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}