{"id":6910,"date":"2022-01-31T18:21:04","date_gmt":"2022-01-31T17:21:04","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=6910"},"modified":"2022-01-31T18:21:04","modified_gmt":"2022-01-31T17:21:04","slug":"eurordis-comparte-video-oficial-dia-de-las-enfermedades-raras-2022","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2022\/01\/31\/eurordis-comparte-video-oficial-dia-de-las-enfermedades-raras-2022\/","title":{"rendered":"EURORDIS Comparte: Video Oficial D\u00eda de las Enfermedades Raras 2022"},"content":{"rendered":"<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">ALIBER se une a la campa\u00f1a desarrollada por Rare Diseases Europe &#8211; EURORDIS en el D\u00eda de las Enfermedades Raras 2022 que arroja luz sobre la comunidad global y diversa de m\u00e1s de 300 millones de personas que viven con una enfermedad rara y sus familias. <\/span><\/p>\n<p><a href=\"http:\/\/www.rarediseaseday.org\"><span class=\"style-scope yt-formatted-string\" dir=\"auto\">www.rarediseaseday.org <\/span><\/a><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">Al contar historias de personas reales de todo el mundo que viven con una enfermedad rara, este video espera mostrar que, si bien cada enfermedad rara es rara, como comunidad compartimos mucho. <\/span><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">El D\u00eda de las Enfermedades Raras cae todos los a\u00f1os el \u00faltimo d\u00eda de febrero; esta campa\u00f1a mundial de concientizaci\u00f3n dirigida por la comunidad re\u00fane a millones de personas en todo el mundo en solidaridad con la comunidad de enfermedades raras. <\/span><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">En 2021, se llevaron a cabo miles de eventos en m\u00e1s de 100 pa\u00edses, que movilizaron a personas que viven con una enfermedad rara y sus familias, profesionales de la salud, responsables de la toma de decisiones y pol\u00edticas, representantes de la industria y la empresa, \u00a1y m\u00e1s! <\/span><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">Este video oficial de la campa\u00f1a 2022 est\u00e1 traducido a m\u00e1s de 40 idiomas y distribuido mundialmente por las 67 organizaciones de pacientes y alianzas nacionales asociadas del D\u00eda de las Enfermedades Raras. <\/span><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">\u00a1Comp\u00e1rtelo hoy! <\/span><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">&#8211; Lea nuestras historias: <\/span><a class=\"yt-simple-endpoint style-scope yt-formatted-string\" href=\"https:\/\/www.youtube.com\/redirect?event=video_description&amp;redir_token=QUFFLUhqbWFQMjZjY1RmWm4xb0djdDhQamxlTU8xNFQtUXxBQ3Jtc0tuQjQtaDh3V0IxejNlSWFOeVVpNDdlbkJnX2htd2VScXluaFlCbWZ3VWl0R1RlYWxjOXFHZlNEa0Uwd0tSXzVrNUVrZHRXU2hOeTIxUFgyeDh0S1pPbkJPaUtnekpQaGJzSktrTlRYcV96dEJEeHFJQQ&amp;q=https%3A%2F%2Fwww.rarediseaseday.org%2Fheroes%2F\" target=\"_blank\" rel=\"nofollow noopener\">https:\/\/www.rarediseaseday.org\/heroes\/<\/a><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">&#8211; Participe: <a href=\"https:\/\/www.rarediseaseday.org\/downloads\/\">https:\/\/www.rarediseaseday.org\/downloads\/<\/a><\/span><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">&#8211; Encuentre eventos que suceden cerca de usted: <a href=\"https:\/\/www.rarediseaseday.org\/category\/events\/\">https:\/\/www.rarediseaseday.org\/category\/events\/<\/a><\/span><\/p>\n<p><a class=\"yt-simple-endpoint style-scope yt-formatted-string\" href=\"https:\/\/www.youtube.com\/hashtag\/rarediseaseday\">#RareDiseaseDay<\/a><span class=\"style-scope yt-formatted-string\" dir=\"auto\"> est\u00e1 organizado por EURORDIS-Rare Diseases Europe y 67 socios de la alianza nacional.<\/span><\/p>\n<p><span class=\"style-scope yt-formatted-string\" dir=\"auto\">Nos gustar\u00eda agradecer a todos los h\u00e9roes de las enfermedades raras de este a\u00f1o por su participaci\u00f3n en la campa\u00f1a: Nada, Vasco, Tsepiso Gloria, Wafic, Jelena y Taka.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p><iframe title=\"D\u00eda de las Enfermedades Raras  Video Oficial 2022\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/u1Qt4FqQQe8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-6914 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/01\/DM-2022-RDI.png\" alt=\"\" width=\"2130\" height=\"1197\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/01\/DM-2022-RDI.png 2130w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/01\/DM-2022-RDI-300x169.png 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/01\/DM-2022-RDI-1024x575.png 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/01\/DM-2022-RDI-768x432.png 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/01\/DM-2022-RDI-1536x863.png 1536w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/01\/DM-2022-RDI-2048x1151.png 2048w\" sizes=\"(max-width: 2130px) 100vw, 2130px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>ALIBER se une a la campa\u00f1a desarrollada por Rare Diseases Europe &#8211; EURORDIS en el D\u00eda de las Enfermedades Raras 2022 que arroja luz sobre la comunidad global y diversa<a href=\"https:\/\/aliber.org\/web\/2022\/01\/31\/eurordis-comparte-video-oficial-dia-de-las-enfermedades-raras-2022\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":2,"featured_media":6913,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[32],"tags":[],"class_list":["post-6910","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-diamundialeerr"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/6910","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=6910"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/6910\/revisions"}],"predecessor-version":[{"id":6915,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/6910\/revisions\/6915"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/6913"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=6910"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=6910"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=6910"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}