{"id":7014,"date":"2022-02-25T22:42:19","date_gmt":"2022-02-25T21:42:19","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=7014"},"modified":"2022-02-25T22:43:56","modified_gmt":"2022-02-25T21:43:56","slug":"fepel-dasha-comparte-yesena-guamani-suscribio-la-declaratoria-en-favor-de-pacientes-con-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2022\/02\/25\/fepel-dasha-comparte-yesena-guamani-suscribio-la-declaratoria-en-favor-de-pacientes-con-enfermedades-raras\/","title":{"rendered":"FEPEL DASHA COMPARTE: YESE\u00d1A GUAMAN\u00cd SUSCRIBI\u00d3 LA DECLARATORIA EN FAVOR DE PACIENTES CON ENFERMEDADES RARAS"},"content":{"rendered":"<p>El Sal\u00f3n Jos\u00e9 Mej\u00eda Lequerica, en la Sede Legislativa, fue sitio de encuentro de diversos actores<\/p>\n<p>sociales, entre ellos, pacientes, representantes de fundaciones y organizaciones sociales, que<\/p>\n<p>acompa\u00f1aron a la segunda vicepresidenta de la Asamblea Nacional, Yese\u00f1a Guaman\u00ed, en la<\/p>\n<p>suscripci\u00f3n de la Declaratoria en favor de las personas con enfermedades o patolog\u00edas raras,<\/p>\n<p>que son aquellas que presentan una serie de s\u00edntomas particulares cuyo diagn\u00f3stico es muy<\/p>\n<p>complejo.<\/p>\n<p>&nbsp;<\/p>\n<p>La legisladora detall\u00f3 que cerca del 8% de la poblaci\u00f3n mundial padece de alg\u00fan tipo de<\/p>\n<p>enfermedades raras, lo que equivale aproximadamente a 300 millones de personas en todo el<\/p>\n<p>mundo. \u201cLa problem\u00e1tica de las enfermedades raras, hu\u00e9rfanas y catastr\u00f3ficas, as\u00ed como,<\/p>\n<p>tambi\u00e9n de discapacidades ha sido priorizada como una de las principales l\u00edneas de trabajo de<\/p>\n<p>mi despacho como asamble\u00edsta y segunda vicepresidenta de la Asamblea Nacional\u201d, asever\u00f3.<\/p>\n<p>&nbsp;<\/p>\n<p>https:\/\/www.asambleanacional.gob.ec\/es\/noticia\/77376-yesena-guamani-suscribio-la-declaratoria-en-favor-de<\/p>\n<p>&nbsp;<\/p>\n<p>#ALIBER2022<\/p>\n<p>&nbsp;<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-7016 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y1.jpg\" alt=\"\" width=\"853\" height=\"1280\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y1.jpg 853w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y1-200x300.jpg 200w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y1-682x1024.jpg 682w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y1-768x1152.jpg 768w\" sizes=\"(max-width: 853px) 100vw, 853px\" \/> <img decoding=\"async\" class=\"alignnone wp-image-7017 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y2.jpg\" alt=\"\" width=\"1280\" height=\"853\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y2.jpg 1280w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y2-300x200.jpg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y2-1024x682.jpg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y2-768x512.jpg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y2-750x500.jpg 750w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/> <img decoding=\"async\" class=\"alignnone wp-image-7018 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y3.jpg\" alt=\"\" width=\"1280\" height=\"853\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y3.jpg 1280w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y3-300x200.jpg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y3-1024x682.jpg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y3-768x512.jpg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y3-750x500.jpg 750w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-7019 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y4.jpg\" alt=\"\" width=\"1280\" height=\"853\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y4.jpg 1280w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y4-300x200.jpg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y4-1024x682.jpg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y4-768x512.jpg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Y4-750x500.jpg 750w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-7020 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Yesena-1.jpg\" alt=\"\" width=\"799\" height=\"533\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Yesena-1.jpg 799w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Yesena-1-300x200.jpg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Yesena-1-768x512.jpg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/02\/Yesena-1-750x500.jpg 750w\" sizes=\"(max-width: 799px) 100vw, 799px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El Sal\u00f3n Jos\u00e9 Mej\u00eda Lequerica, en la Sede Legislativa, fue sitio de encuentro de diversos actores sociales, entre ellos, pacientes, representantes de fundaciones y organizaciones sociales, que acompa\u00f1aron a la<a href=\"https:\/\/aliber.org\/web\/2022\/02\/25\/fepel-dasha-comparte-yesena-guamani-suscribio-la-declaratoria-en-favor-de-pacientes-con-enfermedades-raras\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":2,"featured_media":7015,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[7],"tags":[],"class_list":["post-7014","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/7014","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=7014"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/7014\/revisions"}],"predecessor-version":[{"id":7021,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/7014\/revisions\/7021"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/7015"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=7014"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=7014"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=7014"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}