{"id":7067,"date":"2022-03-04T03:15:20","date_gmt":"2022-03-04T02:15:20","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=7067"},"modified":"2022-05-16T21:20:39","modified_gmt":"2022-05-16T19:20:39","slug":"panama-tendra-fondo-solidario-para-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2022\/03\/04\/panama-tendra-fondo-solidario-para-las-enfermedades-raras\/","title":{"rendered":"Panam\u00e1 tendr\u00e1 Fondo Solidario para las Enfermedades Raras"},"content":{"rendered":"<div class=\"kvgmc6g5 cxmmr5t8 oygrvhab hcukyx3x c1et5uql ii04i59q\">\n<div dir=\"auto\">\n<p>En el marco del evento Iberoam\u00e9rica Unida por la Equidad, organizado por aYOUDas Panam\u00e1, y gracias a la gesti\u00f3n de la Alianza Iberoamericana de Enfermedades Raras- ALIBER, la Latin America Patients Academy- LAPA y el Observatorio VER; se logr\u00f3 la creaci\u00f3n del Fondo para las Enfermedades Raras desde la Presidencia de la Rep\u00fablica de Panam\u00e1, el cual ser\u00e1 inicialmente de 250.000 d\u00f3lares as\u00ed como el aumento del n\u00famero de Enfermedades que har\u00e1n parte del tamizaje neonatal.<\/p>\n<p>La noticia fue dada en el evento de lanzamiento del informe del Estudio de Necesidades Socio-sanitarias de Personas con Enfermedades Raras en Latinoam\u00e9rica- ENSERio LATAM, llevado a cabo en la Alcald\u00eda de Panam\u00e1, por la Dra. Eyra Ruiz, Ministra Consejera en representaci\u00f3n del Se\u00f1or Laurentino Cortizo Cohen, Presidente de la Rep\u00fablica de Panam\u00e1.<\/p>\n<p><a href=\"https:\/\/fb.watch\/bxa-jXaAr2\/\">https:\/\/fb.watch\/bxa-jXaAr2\/<\/a><\/p>\n<\/div>\n<\/div>\n<div dir=\"auto\"><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-7068 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/03\/sra-del-video-2.jpg\" alt=\"\" width=\"720\" height=\"1280\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/03\/sra-del-video-2.jpg 720w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/03\/sra-del-video-2-169x300.jpg 169w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2022\/03\/sra-del-video-2-576x1024.jpg 576w\" sizes=\"(max-width: 720px) 100vw, 720px\" \/><\/div>\n","protected":false},"excerpt":{"rendered":"<p>En el marco del evento Iberoam\u00e9rica Unida por la Equidad, organizado por aYOUDas Panam\u00e1, y gracias a la gesti\u00f3n de la Alianza Iberoamericana de Enfermedades Raras- ALIBER, la Latin America<a href=\"https:\/\/aliber.org\/web\/2022\/03\/04\/panama-tendra-fondo-solidario-para-las-enfermedades-raras\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":2,"featured_media":7068,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,7],"tags":[],"class_list":["post-7067","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/7067","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=7067"}],"version-history":[{"count":7,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/7067\/revisions"}],"predecessor-version":[{"id":7520,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/7067\/revisions\/7520"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/7068"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=7067"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=7067"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=7067"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}