{"id":8355,"date":"2023-11-13T16:31:22","date_gmt":"2023-11-13T15:31:22","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=8355"},"modified":"2023-11-13T16:35:47","modified_gmt":"2023-11-13T15:35:47","slug":"lanzamiento-del-informe-del-estudio-de-necesidades-sociosanitarias-de-personas-y-familias-con-enfermedades-raras-en-centroamerica-y-el-caribe-estudio-enserio-ceam","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2023\/11\/13\/lanzamiento-del-informe-del-estudio-de-necesidades-sociosanitarias-de-personas-y-familias-con-enfermedades-raras-en-centroamerica-y-el-caribe-estudio-enserio-ceam\/","title":{"rendered":"Lanzamiento del Informe del Estudio de Necesidades Sociosanitarias de Personas y Familias con Enfermedades Raras en Centroam\u00e9rica y El caribe \u2013 Estudio ENSERio CEAM"},"content":{"rendered":"<p>Guatemala recibe de primera mano el Lanzamiento del Informe del Estudio de Necesidades Sociosanitarias de Personas y<br \/>\nFamilias con Enfermedades Raras en Centroam\u00e9rica y El caribe \u2013 Estudio ENSERio<br \/>\nCEAM<\/p>\n<p>Juan Carri\u00f3n, Presidente de ALIBER<\/p>\n<p>Dr. Juli\u00e1n Ram\u00edrez Cheyne, MD; PhD Gen\u00e9tica M\u00e9dica; Profesor Universidad del Valle; Investigador Grupo MACOS<\/p>\n<p>Solanyi Mosquera Castillo, Comunicadora Social\/T\u00e9cnica \u00c1rea Salud; Magister en Enfermedades Raras; Referente y Gestora Social de Enfermedades Hu\u00e9rfanas. Secretar\u00eda de Salud P\u00fablica Distrital de Cali.<\/p>\n<p>Dra.Eidith Yulieth Gomez Pineda y Diana Marcela Ortiz Quiroga, Centro de<br \/>\nInvestigaci\u00f3n en Anomal\u00edas Cong\u00e9nitas y Enfermedades Raras &#8211; CIACER, Universidad<br \/>\nICESI<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-8356 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2023\/11\/recibe-de-primera-mano.jpg\" alt=\"\" width=\"1600\" height=\"739\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2023\/11\/recibe-de-primera-mano.jpg 1600w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2023\/11\/recibe-de-primera-mano-300x139.jpg 300w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2023\/11\/recibe-de-primera-mano-1024x473.jpg 1024w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2023\/11\/recibe-de-primera-mano-768x355.jpg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2023\/11\/recibe-de-primera-mano-1536x709.jpg 1536w\" sizes=\"(max-width: 1600px) 100vw, 1600px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Guatemala recibe de primera mano el Lanzamiento del Informe del Estudio de Necesidades Sociosanitarias de Personas y Familias con Enfermedades Raras en Centroam\u00e9rica y El caribe \u2013 Estudio ENSERio CEAM<a href=\"https:\/\/aliber.org\/web\/2023\/11\/13\/lanzamiento-del-informe-del-estudio-de-necesidades-sociosanitarias-de-personas-y-familias-con-enfermedades-raras-en-centroamerica-y-el-caribe-estudio-enserio-ceam\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":2,"featured_media":8356,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2],"tags":[],"class_list":["post-8355","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/8355","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=8355"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/8355\/revisions"}],"predecessor-version":[{"id":8357,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/8355\/revisions\/8357"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/8356"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=8355"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=8355"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=8355"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}