{"id":9040,"date":"2024-04-18T00:38:07","date_gmt":"2024-04-17T22:38:07","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=9040"},"modified":"2024-04-18T00:40:53","modified_gmt":"2024-04-17T22:40:53","slug":"movimiento-asociativo-de-las-enfermedades-raras-en-iberoamerica-2024","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2024\/04\/18\/movimiento-asociativo-de-las-enfermedades-raras-en-iberoamerica-2024\/","title":{"rendered":"An\u00e1lisis del Movimiento Asociativo de Las Enfermedades Raras en Iberoam\u00e9rica 2024"},"content":{"rendered":"

La Alianza Iberoamericana de Enfermedades Raras \u2013 ALIBER invita a participar del An\u00e1lisis del Movimiento Asociativo de Las Enfermedades Raras en Iberoam\u00e9rica 2024<\/p>\n

Esta ser\u00eda la segunda versi\u00f3n de este estudio que inicialmente tuvo lugar en el a\u00f1o 2018, pues ALIBER busca actualizar la informaci\u00f3n e identificar c\u00f3mo ha crecido el Movimiento Asociativo en los \u00faltimos 6 a\u00f1os.<\/p>\n

El objetivo general de esta investigaci\u00f3n es Describir las caracter\u00edsticas de las Organizaciones Iberoamericanas de Pacientes de Enfermedades Raras.<\/p>\n

Solicitamos de manera atenta dedicar unos minutos de su tiempo a complementar este formulario antes del 22 de abril de 2024.<\/p>\n

Contamos con ustedes, \u00a1ALIBER somos todos!<\/p>\n

https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSctaEEruRydsCf-XSrTdSS5pORB9fkKJLsduW7FxjmF_Tc8YQ\/viewform<\/a><\/p>\n

\"\"<\/p>\n","protected":false},"excerpt":{"rendered":"

La Alianza Iberoamericana de Enfermedades Raras \u2013 ALIBER invita a participar del An\u00e1lisis del Movimiento Asociativo de Las Enfermedades Raras en Iberoam\u00e9rica 2024 Esta ser\u00eda la segunda versi\u00f3n de este[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":9039,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2],"tags":[],"class_list":["post-9040","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9040","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=9040"}],"version-history":[{"count":3,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9040\/revisions"}],"predecessor-version":[{"id":9043,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9040\/revisions\/9043"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/9039"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=9040"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=9040"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=9040"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}