{"id":9281,"date":"2024-11-21T23:44:29","date_gmt":"2024-11-21T22:44:29","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=9281"},"modified":"2024-11-21T23:44:29","modified_gmt":"2024-11-21T22:44:29","slug":"palabras-de-kirsten-johnson-presidenta-del-consejo-de-rare-diseases-international-rdi-iii-foro-de-alto-nivel-xi-congreso-iberoamericano-de-enfermedades-raras-aliber-lima-peru-7-y-8-de-no","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2024\/11\/21\/palabras-de-kirsten-johnson-presidenta-del-consejo-de-rare-diseases-international-rdi-iii-foro-de-alto-nivel-xi-congreso-iberoamericano-de-enfermedades-raras-aliber-lima-peru-7-y-8-de-no\/","title":{"rendered":"Palabras de Kirsten Johnson, Presidenta del Consejo de Rare Diseases International \u2013 RDI III FORO DE ALTO NIVEL XI CONGRESO IBEROAMERICANO DE ENFERMEDADES RARAS – ALIBER Lima, Per\u00fa 7 y 8 de noviembre de 2024"},"content":{"rendered":"

Agradecemos la participaci\u00f3n de Kirsten Johnson, Presidenta del Consejo de Rare Diseases International \u2013 RDI en el III FORO DE ALTO NIVEL XI CONGRESO IBEROAMERICANO DE ENFERMEDADES RARAS \u2013 ALIBER, donde manifiesta que El Consejo Internacional de Enfermedades Raras trabaja para impulsar una resoluci\u00f3n de la Asamblea Mundial de la Salud (mayo 2025) que establezca un plan de acci\u00f3n global para enfermedades raras, el cual busca que los gobiernos implementen estructuras, pol\u00edticas y apoyos que garanticen equidad, acceso a diagn\u00f3sticos, tratamientos y una vida plena para quienes viven con estas condiciones.<\/p>\n

Para ver la participaci\u00f3n de Kirsten Johnson visite:<\/p>\n

https:\/\/youtu.be\/fcWZDt1RXn0<\/a><\/p>\n

\"\"<\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Agradecemos la participaci\u00f3n de Kirsten Johnson, Presidenta del Consejo de Rare Diseases International \u2013 RDI en el III FORO DE ALTO NIVEL XI CONGRESO IBEROAMERICANO DE ENFERMEDADES RARAS \u2013 ALIBER,[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":9282,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,8,138],"tags":[],"class_list":["post-9281","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-encuentros","category-noticias"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9281","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=9281"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9281\/revisions"}],"predecessor-version":[{"id":9283,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9281\/revisions\/9283"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/9282"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=9281"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=9281"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=9281"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}