{"id":9458,"date":"2025-02-22T14:26:58","date_gmt":"2025-02-22T13:26:58","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=9458"},"modified":"2025-02-22T14:28:34","modified_gmt":"2025-02-22T13:28:34","slug":"aliber-invita-a-participar-de-su-webinar-en-conmemoracion-del-dia-mundial-de-las-eerr-2025-avances-y-perspectivas-en-eerr-hacia-la-resolucion-de-la-oms-en-2025-2","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/02\/22\/aliber-invita-a-participar-de-su-webinar-en-conmemoracion-del-dia-mundial-de-las-eerr-2025-avances-y-perspectivas-en-eerr-hacia-la-resolucion-de-la-oms-en-2025-2\/","title":{"rendered":"ALIBER invita a participar de su Webinar en conmemoracio\u0301n del Di\u0301a Mundial de las EERR 2025: Avances y Perspectivas en EERR: Hacia la Resolucio\u0301n de la OMS en 2025"},"content":{"rendered":"<p><strong>Avances y Perspectivas en EERR: Hacia la Resolucio\u0301n de la OMS en 2025<\/strong><\/p>\n<p><strong>Fecha:<\/strong> martes 25 de febrero de 2025<\/p>\n<p><strong>Hora:<\/strong><\/p>\n<ul>\n<li>Espan\u0303a: 16:00 Horas<\/li>\n<li>Me\u0301xico: 9:00 a.m.<\/li>\n<li>Colombia: 10:00 a.m.<\/li>\n<li>Argentina: 12:00 p.m.<\/li>\n<\/ul>\n<p><strong>Juan Carri\u00f3n &#8211; ALIBER y FEDER<\/strong><\/p>\n<p>Destacado li\u0301der en el a\u0301mbito de las enfermedades raras. Desde 2013, preside la Alianza Iberoamericana de Enfermedades Raras &#8211; ALIBER, organizacio\u0301n que impulso\u0301 para fortalecer la colaboracio\u0301n entre asociaciones de habla hispana y portuguesa.<\/p>\n<p>Adema\u0301s, desde 2012, lidera la Federacio\u0301n Espan\u0303ola de Enfermedades Raras &#8211; FEDER y su Fundacio\u0301n, promoviendo iniciativas para mejorar la calidad de vida de quienes conviven con estas patologi\u0301as.<\/p>\n<p>Su compromiso tambie\u0301n se refleja en la presidencia de la Asociacio\u0301n de Enfermedades Raras y otros Trastornos Graves del Desarrollo &#8211; D&#8217;Genes y en la fundacio\u0301n de la Asociacio\u0301n Espan\u0303ola de Lipodistrofias &#8211; AELIP.<\/p>\n<p>En 2024, represento\u0301 a ALIBER y FEDER en un foro paralelo a la Asamblea Mundial de la Salud en Ginebra, destacando los desafi\u0301os que enfrentan las personas con enfermedades raras y sin diagno\u0301stico.<\/p>\n<p><strong>Inscripciones:<\/strong><\/p>\n<p><a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSfEOlOq07hyXOioWmftRQV_jPkxsPnVJ5U1K_ZSbySWUnEhUg\/viewform?usp=dialog\">https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSfEOlOq07hyXOioWmftRQV_jPkxsPnVJ5U1K_ZSbySWUnEhUg\/viewform?usp=dialog<\/a><\/p>\n<p>\u00a1Agradecemos nos apoyen en la difusio\u0301n!<\/p>\n<p>Los esperamos.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-9459 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/02\/juan.jpeg\" alt=\"\" width=\"1023\" height=\"1280\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/02\/juan.jpeg 1023w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/02\/juan-240x300.jpeg 240w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/02\/juan-818x1024.jpeg 818w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/02\/juan-768x961.jpeg 768w\" sizes=\"(max-width: 1023px) 100vw, 1023px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Avances y Perspectivas en EERR: Hacia la Resolucio\u0301n de la OMS en 2025 Fecha: martes 25 de febrero de 2025 Hora: Espan\u0303a: 16:00 Horas Me\u0301xico: 9:00 a.m. Colombia: 10:00 a.m.<a href=\"https:\/\/aliber.org\/web\/2025\/02\/22\/aliber-invita-a-participar-de-su-webinar-en-conmemoracion-del-dia-mundial-de-las-eerr-2025-avances-y-perspectivas-en-eerr-hacia-la-resolucion-de-la-oms-en-2025-2\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":9459,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,32,3,138],"tags":[],"class_list":["post-9458","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-diamundialeerr","category-eventos","category-noticias"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9458","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=9458"}],"version-history":[{"count":2,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9458\/revisions"}],"predecessor-version":[{"id":9462,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9458\/revisions\/9462"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/9459"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=9458"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=9458"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=9458"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}