{"id":9783,"date":"2025-05-08T18:47:02","date_gmt":"2025-05-08T16:47:02","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=9783"},"modified":"2025-05-08T18:47:02","modified_gmt":"2025-05-08T16:47:02","slug":"asociacion-todos-unidos-por-las-enfermedades-raras-del-uruguay-atueru-labor-y-trayectoria","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/05\/08\/asociacion-todos-unidos-por-las-enfermedades-raras-del-uruguay-atueru-labor-y-trayectoria\/","title":{"rendered":"Asociaci\u00f3n Todos Unidos por las Enfermedades Raras del Uruguay (ATUERU): labor y trayectoria"},"content":{"rendered":"<p>Andrea Falero \u2013 Presidenta de ATUERU<\/p>\n<p>La ponencia present\u00f3 la historia, misi\u00f3n y principales l\u00edneas de acci\u00f3n de ATUERU como organizaci\u00f3n referente en la defensa de los derechos de las personas que viven con enfermedades raras en Uruguay. Se destac\u00f3 el trabajo de incidencia, acompa\u00f1amiento a familias, promoci\u00f3n del diagn\u00f3stico oportuno y construcci\u00f3n de redes de apoyo, as\u00ed como el rol fundamental del movimiento asociativo en visibilizar estas condiciones y avanzar hacia una atenci\u00f3n m\u00e1s equitativa y humanizada.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-9785 size-full\" src=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/05\/Andrea-scaled.jpeg\" alt=\"\" width=\"1920\" height=\"2560\" srcset=\"https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/05\/Andrea-scaled.jpeg 1920w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/05\/Andrea-225x300.jpeg 225w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/05\/Andrea-768x1024.jpeg 768w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/05\/Andrea-1152x1536.jpeg 1152w, https:\/\/aliber.org\/web\/wp-content\/uploads\/2025\/05\/Andrea-1536x2048.jpeg 1536w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Andrea Falero \u2013 Presidenta de ATUERU La ponencia present\u00f3 la historia, misi\u00f3n y principales l\u00edneas de acci\u00f3n de ATUERU como organizaci\u00f3n referente en la defensa de los derechos de las<a href=\"https:\/\/aliber.org\/web\/2025\/05\/08\/asociacion-todos-unidos-por-las-enfermedades-raras-del-uruguay-atueru-labor-y-trayectoria\/\">[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":9785,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,8,3,138],"tags":[],"class_list":["post-9783","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-encuentros","category-eventos","category-noticias"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9783","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=9783"}],"version-history":[{"count":1,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9783\/revisions"}],"predecessor-version":[{"id":9786,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9783\/revisions\/9786"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/9785"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=9783"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=9783"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=9783"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}