{"id":9987,"date":"2025-08-23T03:11:32","date_gmt":"2025-08-23T01:11:32","guid":{"rendered":"https:\/\/aliber.org\/web\/?p=9987"},"modified":"2025-08-26T18:44:21","modified_gmt":"2025-08-26T16:44:21","slug":"%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1","status":"publish","type":"post","link":"https:\/\/aliber.org\/web\/2025\/08\/23\/%f0%9d%97%96%f0%9d%97%bc%f0%9d%97%bb%f0%9d%97%bc%f0%9d%97%b0%f0%9d%97%b2-%f0%9d%97%b9%f0%9d%97%ae%f0%9d%98%80-%f0%9d%97%b2%f0%9d%97%bb%f0%9d%98%81%f0%9d%97%b6%f0%9d%97%b1%f0%9d%97%ae%f0%9d%97%b1\/","title":{"rendered":"\ud835\uddd6\ud835\uddfc\ud835\uddfb\ud835\uddfc\ud835\uddf0\ud835\uddf2 \ud835\uddf9\ud835\uddee\ud835\ude00 \ud835\uddf2\ud835\uddfb\ud835\ude01\ud835\uddf6\ud835\uddf1\ud835\uddee\ud835\uddf1\ud835\uddf2\ud835\ude00 \ud835\uddfe\ud835\ude02\ud835\uddf2 \ud835\uddf3\ud835\uddfc\ud835\uddff\ud835\uddfa\ud835\uddee\ud835\uddfb \ud835\uddfd\ud835\uddee\ud835\uddff\ud835\ude01\ud835\uddf2 \ud835\uddf1\ud835\uddf2 \ud835\uddd4\ud835\udddf\ud835\udddc\ud835\uddd5\ud835\uddd8\ud835\udde5"},"content":{"rendered":"
ALAPA<\/strong> es una asociaci\u00f3n civil sin fines de lucro en Argentina que se dedica a brindar apoyo y buscar soluciones para pacientes y familias con diagn\u00f3sticos de enfermedades gen\u00e9ticas, poco frecuentes, cr\u00f3nicas, de dif\u00edcil diagn\u00f3stico, discapacitantes, degenerativas o hu\u00e9rfanas de tratamiento<\/div>\n
\n

Promueve la creaci\u00f3n de grupos de pacientes.<\/p>\n

Adem\u00e1s, promueve la vinculaci\u00f3n entre la comunidad de pacientes, m\u00e9dicos, investigadores y acad\u00e9micos.<\/p>\n

\u00a1\u00danete a ALIBER! escr\u00edbenos a<\/p>\n

\ud835\udc1c\ud835\udc28\ud835\udc26\ud835\udc2e\ud835\udc27\ud835\udc22\ud835\udc1c\ud835\udc1a\ud835\udc1c\ud835\udc22\ud835\udc28\ud835\udc27\ud835\udc1e\ud835\udc2c@\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc1b\ud835\udc1e\ud835\udc2b.\ud835\udc28\ud835\udc2b\ud835\udc20<\/p>\n

para que te guiemos en el proceso de adherirte a nuestra Alianza.<\/p>\n

Somos una red que agremia m\u00e1s de 700 organizaciones de pacientes con Enfermedades Raras, presente en 19 pa\u00edses de Iberoam\u00e9rica, que coordina acciones para fortalecer el movimiento asociativo, dar visibilidad a las EERR y representar a las personas con Enfermedades Poco Frecuentes de Iberoam\u00e9rica ante organismos locales, regionales, nacionales e internacionales, creando un espacio de colaboraci\u00f3n conjunta y permanente para compartir conocimientos, experiencias y buenas pr\u00e1cticas en las \u00e1reas social, sanitaria, educativa y laboral.<\/p>\n<\/div>\n

\"\"<\/div>\n","protected":false},"excerpt":{"rendered":"

ALAPA es una asociaci\u00f3n civil sin fines de lucro en Argentina que se dedica a brindar apoyo y buscar soluciones para pacientes y familias con diagn\u00f3sticos de enfermedades gen\u00e9ticas, poco[…]<\/a><\/p>\n","protected":false},"author":1,"featured_media":9988,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[2,138,7],"tags":[],"class_list":["post-9987","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aliber","category-noticias","category-socios"],"_links":{"self":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9987","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/comments?post=9987"}],"version-history":[{"count":4,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9987\/revisions"}],"predecessor-version":[{"id":9995,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/posts\/9987\/revisions\/9995"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media\/9988"}],"wp:attachment":[{"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/media?parent=9987"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/categories?post=9987"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aliber.org\/web\/wp-json\/wp\/v2\/tags?post=9987"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}