The World Lipodystrophy Day arises as a platform to develop reference activities, as well as to undertake, unite and promote political and social actions in different places in Spain and Europe, in collaboration with the alliances of Latin American countries (ALIBER) and the European organization of rare diseases (EURORDIS). The first world day of lipodystrophies was celebrated in 2013.
AELIP celebrates at international level in March, the most important awareness campaign of the year: the World Lipodystrophy Day March 31.
This campaign is promoted by the European Organisation for Rare Diseases (EURORDIS) and the Spanish Federation for Rare Diseases (FEDER) and is developed in coordination with the Ibero-American Alliance for Rare Diseases (ALIBER) Rare diseases international (RDI), the Spanish Society for Lipodystrophies (SEL) and the European Consortium for Lipodystrophies (ECLIP).
Goals and Objectives
Among the objectives of AELIP for this campaign:
To raise awareness of the public health problems caused by lipodystrophies.
To implement actions that will have an impact on avoiding the social isolation that in many cases those affected by and their families with lipodystrophies suffer.
To carry out activities to disseminate the characteristics and particularities of lipodystrophies.
To carry out coordination actions with all the parts involved: patients, public administration, health professionals, etc., in order to find resources and improve the attention of those affected.
